Evidence map›Paper›PMID 40921072›Full record

ArticleDementia (London, England)2026

Experiences of Formal and Informal Support Among Adult-Daughter Caregivers of People With Dementia in Sweden: A Qualitative Study.

Oscar Blomberg, Abla Sami, Paul Farrand, Renita Sörensdotter, Frida Svedin, Anders Brantnell, Louise von Essen, Anna Cristina Åberg, Joanne Woodford

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Dementia (London, England), 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Oscar BlombergCIRCLE - Complex Intervention Research in Health and Care, Department of Women´s and Children´s Health, Uppsala University, Uppsala, Sweden.ORCID 0000-0002-7472-5130
Abla SamiCIRCLE - Complex Intervention Research in Health and Care, Department of Women´s and Children´s Health, Uppsala University, Uppsala, Sweden.ORCID 0009-0001-8708-2875
Paul FarrandClinical Education, Development and Research (CEDAR), Psychology, University of Exeter, Devon, UK.ORCID 0000-0001-7898-5362
Renita SörensdotterCentre for Gender Research, Uppsala University, Uppsala, Sweden.ORCID 0000-0003-0987-7055
Frida SvedinCIRCLE - Complex Intervention Research in Health and Care, Department of Women´s and Children´s Health, Uppsala University, Uppsala, Sweden.ORCID 0000-0002-8421-4908
Anders BrantnellCIRCLE - Complex Intervention Research in Health and Care, Department of Women´s and Children´s Health, Uppsala University, Uppsala, Sweden.ORCID 0000-0001-6841-7644
Louise von EssenCIRCLE - Complex Intervention Research in Health and Care, Department of Women´s and Children´s Health, Uppsala University, Uppsala, Sweden.
Anna Cristina ÅbergCIRCLE - Complex Intervention Research in Health and Care, Department of Women´s and Children´s Health, Uppsala University, Uppsala, Sweden.
Joanne WoodfordCIRCLE - Complex Intervention Research in Health and Care, Department of Women´s and Children´s Health, Uppsala University, Uppsala, Sweden.ORCID 0000-0001-5062-6798

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

People with dementia are living longer in the community and reliance on informal caregivers is increasing. Few studies have focused on the experiences of adult-daughter caregivers (daughter caregivers), who may have increased risk of depression and lack of support compared with spousal caregivers. We aimed to explore the experiences of accessing and receiving formal and informal support among daughter caregivers of people living with dementia in Sweden. We conducted semi-structured interviews with 23 daughter caregivers. A topic guide was used to explore experiences of accessing and receiving formal and informal support in their caregiving role. We analyzed the interviews using reflexive thematic analysis. We generated two themes: Types of support, and Mismatched support. The first theme, with subthemes

Indexed as

Adult ChildrenCaregiversDementiaSocial SupportAdultAgedAged, 80 and overFemaleHumansInterviews as TopicMaleMiddle AgedQualitative ResearchSwedenadult-daughtercaregiverdementiaformalinformalsupport

Identifiers

PMID40921072
PMCPMC13062462

What OpenQuestion holds

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LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.