Evidence map›Paper›PMID 40920885›Full record

ArticlePLoS neglected tropical diseases2025

People-centered strategies to mobilize people living with disabilities due to Neglected Tropical Diseases (PD-NTDs) to influence policy and programs: A mixed-methods study in Côte d'Ivoire.

Julien Aké, Eunheh Koh, Tiembre Issiaka, Boko-Koiadia Adjoua N'Groma Nadège, Lorou Bi Maxime, Maneesh Phillip, Konan Anne Cécille, Rie Yotsu

Abstract read
In one paragraph

Article in PLoS neglected tropical diseases, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Buruli ulcer.Nature reviews. Disease primers · 2025
    Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Julien AkéCroissance et Optimisation des Entreprises (COPTIMENT), Abidjan, Cote d'Ivoire.ORCID 0009-0005-4166-8845
Eunheh KohMedical College of Georgia, Augusta, GeorgiaUnited States of America.
Tiembre IssiakaUniversity of Felix Houphouët-Boigny, Abidjan, Côte d'Ivoire.
Boko-Koiadia Adjoua N'Groma NadègeInstitute of Ethno-sociology, University of Felix Houphouët-Boigny, Abidjan, Côte d'Ivoire.
Lorou Bi MaximeCabinet d'Etudes Statistiques et Informatique, Abidjan, Cote d'Ivoire.
Maneesh PhillipEffect Hope Canada, Ontario, Canada.
Konan Anne CécilleFédération des Associations des Handicapes de Cote d'Ivoire, Abidjan, Côte d'Ivoire.
Rie YotsuDepartment of Tropical Medicine and Infectious Disease, Tulane University, New Orleans, Louisiana, United States of America.

Funding

Leprosy Research Initiative and Effect Hope Canada
6 · The paper itself

Abstract

introductionNeglected tropical diseases (NTDs) are a priority in the public health agenda for Côte d'Ivoire, with persons living with disabilities due to NTDs (PD-NTDs) experiencing many challenges in their daily lives. Current policies do not sufficiently support PD-NTDs, thereby highlighting the need to identify opportunities for policy improvement.

methodsThis study was carried out in two phases: first to identify the current needs (formative phase) and then to develop a pilot strategy (implementation phase). In the formative phase, pertinent current legislation was reviewed. Then, interviews of PD-NTDs and their caregivers were conducted and analyzed quantitatively. Thematic analysis of focus groups with key community stakeholders was also completed. In the implementation phase, a pilot strategy was developed to address the identified issues.

results172 PD-NTDs and their caregivers were surveyed through this study. 99% of PD-NTDs expressed a need for rehabilitation, healthcare and psychosocial support. More than 80% endorsed the need for healthcare services and free medications, 92% expressed the need for educational services, and 83% reported economic difficulties. Furthermore, 30% of PD-NTDs reported limited awareness of specialized care services available in the community, 25% endorsed limited knowledge of current legislation that protects the rights of people living with disabilities, and 38% faced significant stigma and discrimination within the past 12 months. Fifty-six interviews with key informants further echoed these gaps. A pilot strategy was developed with four pillars to (1) increase community advocacy, (2) combat stigma, (3) promote mutual support among PD-NTDs, and (4) improve the sustainability of the effort. Forty-one out of 49 activities were completed. DISCUSSION: This project represents a comprehensive effort to identify policy opportunities to effectively support PD-NTDs. This approach may be used by other organizations that plan to develop initiatives to target the needs of PD-NTDs in their local communities.

Indexed as

Health PolicyNeglected DiseasesPersons with DisabilitiesAdultCaregiversCote d'IvoireFemaleHumansMaleMiddle AgedTropical Medicine

Identifiers

PMID40920885
PMCPMC12431663

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.