Evidence map›Paper›PMID 40917163›Full record

ArticleJSLS : Journal of the Society of Laparoendoscopic Surgeons

Following Fibroids: An Analysis of Social Media Narratives.

Kelsey Musselman, Sydney Olson, Marie-Claire Leaf, Anja Frost, Kristin Patzkowsky, Khara Simpson, Karen C Wang, Harold Wu, Mostafa Borahay

Abstract read
In one paragraph

Article in JSLS : Journal of the Society of Laparoendoscopic Surgeons. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Kelsey MusselmanDepartment of Gynecology and Obstetrics, Johns Hopkins Hospital, Baltimore, MD, USA.
Sydney OlsonDepartment of Gynecology and Obstetrics, Johns Hopkins Hospital, Baltimore, MD, USA.
Marie-Claire LeafDepartment of Gynecology and Obstetrics, Johns Hopkins Hospital, Baltimore, MD, USA.
Anja FrostDepartment of Gynecology and Obstetrics, Johns Hopkins Hospital, Baltimore, MD, USA.
Kristin PatzkowskyDepartment of Gynecology and Obstetrics, Johns Hopkins Hospital, Baltimore, MD, USA.
Khara SimpsonDepartment of Gynecology and Obstetrics, Johns Hopkins Hospital, Baltimore, MD, USA.
Karen C WangDepartment of Gynecology and Obstetrics, Johns Hopkins Hospital, Baltimore, MD, USA.
Harold WuDepartment of Gynecology and Obstetrics, Johns Hopkins Hospital, Baltimore, MD, USA.
Mostafa BorahayDepartment of Gynecology and Obstetrics, Johns Hopkins Hospital, Baltimore, MD, USA.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background and Objectives: Many patients with uterine fibroids turn to social media for information, where fibroid-related content has grown substantially. To effectively address misconceptions and deliver high-quality, patient-centered care, physicians should be aware of the online information their patients encounter. This study analyzes fibroid-related content on social media to better understand the information being consumed. Methods: The top 100 "liked" posts using "#fibroids" were identified on Facebook, Instagram, and TikTok using a third-party web scraping tool. Post demographics and content were assessed by two reviewers and were included if they were in English and related to uterine fibroids. Information quality was measured with the DISCERN instrument; understandability and actionability were assessed using the Patient Education Materials Assessment Tool (PEMAT). Results: A total of 300 social media posts were analyzed (100 per platform) from October 2019 to June 2024. TikTok posts had the highest engagement, with a median of 23,150 "likes" and 510,800 views. Content themes included promotional (51%), diet/supplements (41%), awareness (36%), and educational (33%). Alternative remedies were the most frequently mentioned treatment (46%), followed by surgery (29%) though with low mention of minimally invasive procedures (6.7%). DISCERN scores indicated poor information quality (mean 28.4), while PEMAT scores showed high understandability (mean 94.9%). Conclusion: Social media contains a large volume of mostly low-quality fibroid-related content and especially lacks representation of minimally invasive surgical options. Improved efforts are needed to promote accurate, evidence-based information online.

Indexed as

LeiomyomaPatient Education as TopicSocial MediaUterine NeoplasmsFemaleHumansNarrationFibroid managementFibroidsMisinformationOnline informationSocial media

Identifiers

PMID40917163
PMCPMC12409710

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.