Evidence map›Paper›PMID 40913778›Full record

ArticleThe International journal of health planning and management2026

Patient Roles and Patient Knowledge in Learning Health Systems.

Cara Evans, Christopher Canning, Heather L Bullock

Abstract read
In one paragraph

Article in The International journal of health planning and management, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Review
  2. Patient Roles and Patient Knowledge in Learning Health Systems.The International journal of health planning and management · 2026
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors.

Cara EvansWaypoint Centre for Mental Health Care, Penetanguishene, Ontario, Canada.ORCID https://orcid.org/0000-0003-2008-4742
Christopher CanningWaypoint Centre for Mental Health Care, Penetanguishene, Ontario, Canada.
Heather L BullockWaypoint Centre for Mental Health Care, Penetanguishene, Ontario, Canada.

Funding

Canadian Institutes of Health Research-Institute of Health Services and Policy ResearchHealth System Impact Fellowship 190439
6 · The paper itself

Abstract

Learning health systems collect and analyse data on an ongoing basis to make real-time, evidence-informed decisions. Patient involvement is central to learning health systems. In this perspective paper, we describe implications that LHSs' distinguishing features have for patient involvement. These include the need to: build capacity for patients to engage across cycles of data collection and analysis; flesh out the role of patients with respect to collection and analysis of health system data; and create infrastructure to support involvement within learning-intensive environments. We argue that meaningfully involving patients in LHSs requires attention to the relational and epistemological complexity of this endeavour. We conclude with six recommendations for practice, policy, and research.

Indexed as

KnowledgeLearning Health SystemPatient ParticipationData CollectionHumanslearning health systemspatient engagementpatient involvementpatient leadership

Identifiers

PMID40913778
PMCPMC12794130

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.