Evidence map›Paper›PMID 40913239›Full record

ArticleBMC palliative care2025

Mapping advance care planning and advance directives in Latin America.

Natália Rocha Tardelli, Fernanda Bono Fukushima, Jenny T van der Steen, Manuel Iván Cobas Rodríguez, Rasa Mikelyte, Daniel Neves Forte, Alex Sander Watanabe Palácio, Vilma Adriana Tripodoro, Mirna Garcia Burgoa, Douglas Henrique Crispim and 17 more

Abstract read
In one paragraph

Article in BMC palliative care, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed.

  1. Article
  2. Article
  3. Review
  4. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

27 authors.

Natália Rocha TardelliMedical School, Internal Medicine Department, Geriatrics Division, São Paulo State University (UNESP), Av. Prof. Mario Rubens Guimaraes Montenegro, Botucatu, SN, 18618-687, Brazil. n.tardelli@unesp.br.ORCID http://orcid.org/0000-0002-4659-3054
Fernanda Bono FukushimaMedical School, Department of Surgical Specialties and Anesthesiology, Anesthesiology Division, São Paulo State University (UNESP), Av. Prof. Mario Rubens Guimaraes Montenegro, Botucatu, SN, 18618-687, Brazil.ORCID http://orcid.org/0000-0001-8055-5425
Jenny T van der SteenDepartment of Public Health and Primary Care, Leiden University Medical Center, Leiden, The Netherlands.ORCID http://orcid.org/0000-0002-9063-7501
Manuel Iván Cobas RodríguezCentro de Bioética Juan Pablo II, Rua Mayia Rodríguez, SN, Víbora, La Habana (Havana), Cuba.ORCID http://orcid.org/0009-0005-4348-2163
Rasa MikelyteCounty of Kent, University of Kent, Centre for Health Services Studies, Canterbury, UK.ORCID http://orcid.org/0000-0002-2772-8240
Daniel Neves ForteUniversity of São Paulo Medical School, Hospital das Clínicas Central Institute, Emergency Medicine ICU, Av. Dr. Arnaldo, 455, São Paulo, Cerqueira César, São Paulo - SP, 01246903, Brazil.ORCID http://orcid.org/0000-0003-1996-7193
Alex Sander Watanabe PalácioMedical School, Internal Medicine Department, Geriatrics Division, São Paulo State University (UNESP), Av. Prof. Mario Rubens Guimaraes Montenegro, Botucatu, SN, 18618-687, Brazil.ORCID http://orcid.org/0009-0005-7370-5399
Vilma Adriana TripodoroPallium Latinoamérica Institute, Buenos Aires, Argentina.ORCID http://orcid.org/0000-0003-2328-6032
Mirna Garcia BurgoaAsociación Alianza Boliviana De Cuidados Paliativos (Bolivian Alliance of Palliative Care Association), Av. Tihuanacu Nº 1115, casi esquina Chayanta, Zona Villa El Carmen - Senkata, El Alto, La Paz, Bolivia.
Douglas Henrique CrispimUniversity of São Paulo Medical School, Hospital das Clínicas, Perdizes Institute, Cotoxó Street (Rua Cotoxó), #1142, Perdizes, São Paulo, SP (São Paulo), 05021-001, Brazil.ORCID http://orcid.org/0000-0002-3408-0817
Alfredo Rodríguez-NúñezFacultad de Medicina, Pontificia Universidad Católica de Chile, Sección Medicina Paliativa, 5º Floor, Santiago, Diagonal Paraguay, #365, Chile.ORCID http://orcid.org/0000-0002-3123-653X
Luis Ricardo González CruzHospital Pediátrico La Misericordia (HOMI), Bogotá, Colombia.ORCID http://orcid.org/0009-0009-1196-9590
Mariuska Forteza SáezInstituto de Oncología y Radiobiología de La Habana, Calle 29 Entre F y ELa Habana, Vedado, Plaza, Cuba.ORCID http://orcid.org/0000-0001-7010-8541
Patricia Bonilla SierraUniversidad Técnica Particular de Loja Ecuador, Loja, Ecuador.ORCID http://orcid.org/0000-0003-4782-523X
Ancu Tatiana Feng EscobarHospice La Cima, Paliamed , San Salvador, El Salvador.ORCID http://orcid.org/0000-0002-8174-3871
María Elena Del Rosario Alcántara GodoyInstituto Nacional de Cancerología - INCAN, Guatemala City, Guatemala.ORCID http://orcid.org/0009-0000-8995-7754
Tulio Enrique Velásquez CastellanosCentro de Cuidados Paliativos Asociación Omega (Omega Association Palliative Care Center), Pueblo Nuevo, Calzada Martinica, #115, Tegucigalpa, Honduras.
Mónica Osio SaldañaColegio Mexicano de Cuidados Paliativos y de Soporte, Mexico City, Mexico.ORCID http://orcid.org/0000-0002-6482-096X
Nisla Camaño ReyesCaja de Seguro Social de Panama, Clayton Ancon. Dirección Nacional de Servicios de Salud, Edificio 519, Panama City, Panama.ORCID http://orcid.org/0009-0007-8208-3776
Miriam Elisa Riveros RíosFacultad de Ciencias Médicas, Universidad Nacional de Asunción, Asunción, Paraguay.ORCID http://orcid.org/0000-0002-0302-2278
Maria Del Rosario Berenguel CookServicio de Dolor y Paliativos en Oncocenter-Auna-Oncosalud, Guardia Civil Avenue, San Borja, #571, Lima, Peru.
Gloria Castillo PichardoInstituto Nacional del Cáncer Rosa Sanchez Pérez, Av. Correa y Cidron No. 10105, Zona Universitaria, Santo Domingo, Dominican Republic.
Carlos Fernando Acuña AguilarUniversidad Santa Paula, Curridabat, San José, Costa Rica.
Gabriela Píriz AlvarezServicio de Medicina Paliativa Hospital Maciel, Calle 25 de Mayo, #174, Montevideo, Uruguay.ORCID http://orcid.org/0000-0001-7808-5962
Ismariel Inés Espín GonzalezServicio de Hospitalización Domiciliaria, Hospital Puerto Montt, Los Aromos 65, Puerto MonttPuerto Montt, Los Lagos, Chile.
Leonardo de Andrade Rodrigues BritoFaculty of Medical Sciences (FCM), Collective Health Department, University of Campinas (Unicamp), Cidade Universitária ¨Zeferino Vaz¨, Albert Sabin Street, S/n°, São Paulo, Campinas, 13083-894, Brazil.ORCID http://orcid.org/0000-0002-2807-6256
Edison Iglesias de Oliveira VidalMedical School, Internal Medicine Department, Geriatrics Division, São Paulo State University (UNESP), Av. Prof. Mario Rubens Guimaraes Montenegro, Botucatu, SN, 18618-687, Brazil.ORCID http://orcid.org/0000-0002-1573-4678

Funding

Fundação de Amparo à Pesquisa do Estado de São Paulo 2022/14878-7
6 · The paper itself

Abstract

BACKGROUND/

aimsThe extent to which low- and middle-income countries have implemented Advance Care Planning (ACP) and Advance Directives (AD) remains unclear. We aimed to map the current status of ACP/AD in Latin America.

methodsThis cross-sectional, mixed-methods survey of ACP/AD in LA comprised interviews with 18 key informants from 18 out of 20 countries, most of whom were appointed by national Palliative Care Associations. Online interviews were conducted with each informant, covering a range of relevant topics from AD regulations to the use of ACP/AD in the context of end-of-life clinical decision making. We performed member checking and data triangulation to confirm our findings.

resultsOnly eight (44%) countries have some form of ACP/AD regulations. Most regulatory frameworks tend to adopt a legalistic pattern heavily influenced by the North American model. Despite that characteristic of AD regulations in LA, the leading strategy used by patients to avoid unwanted treatment at the end of life is through conversations with their families, whereas the least common strategy was consulting with a lawyer. In six (33%) countries, informants believed it was common for patients to grant their families permission to modify their previous choices regarding future treatments. The religiosity/spirituality of populations play an important role in the implementation of ACP in the region. Additionally, respecting patients' preferences of care at the end of life appears to be tied more to aspects related to the characteristics of doctor-patient relationship, and the degree of integration of palliative care into the healthcare system than the existence or content of AD regulations. There was consensus that none of the countries provide sufficient education about ACP/AD to healthcare professionals.

conclusionsOur findings encourage rethinking ACP/AD in LA from a decolonial perspective, considering characteristics such as the preference for a relational model of autonomy in several countries and the importance of taking the religiosity/spirituality of individuals into account during ACP conversations. Our data also suggest that honoring patients' preferences of care at the end of life entails integrating palliative care into health care systems, educating healthcare professionals and the population, and fostering longitudinal trusting relationships between those professionals, patients, and their families.

Indexed as

Advance Care PlanningAdvance DirectivesAdultCross-Sectional StudiesFemaleHumansLatin AmericaMaleMiddle AgedPalliative CareQualitative ResearchSurveys and QuestionnairesTerminal CareAdvance care planningAdvance directivesAgingCross-sectional studiesLatin AmericaPalliative care

Identifiers

PMID40913239
PMCPMC12413744

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.