Evidence map›Paper›PMID 40910576›Full record

ArticleJournal of clinical nursing2026

Parent's Process of Escalation of Care for Their Deteriorating Children Admitted to Paediatric Wards: A Grounded Theory.

Catia Genna, Kiara Ros Thekkan, Immacolata Dall'oglio, Emanuela Tiozzo, Massimiliano Raponi, Corrado Cecchetti, Orsola Gawronski

Abstract read
In one paragraph

Article in Journal of clinical nursing, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

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2citing papers in PubMed
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1 · What the graph read from it

What it found

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2 · The registry

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3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

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4 · The record

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5 · Who and what money

Authors and funding

7 authors.

Catia GennaProfessional Development, Continuing Education and Research Unit, Medical Directorate, Bambino Gesù Children's Hospital IRCCS, Rome, Italy.ORCID 0000-0002-6778-8598
Kiara Ros ThekkanProfessional Development, Continuing Education and Research Unit, Medical Directorate, Bambino Gesù Children's Hospital IRCCS, Rome, Italy.
Immacolata Dall'oglioProfessional Development, Continuing Education and Research Unit, Medical Directorate, Bambino Gesù Children's Hospital IRCCS, Rome, Italy.ORCID 0000-0002-2398-2014
Emanuela TiozzoProfessional Development, Continuing Education and Research Unit, Medical Directorate, Bambino Gesù Children's Hospital IRCCS, Rome, Italy.
Massimiliano RaponiMedical Directorate, Bambino Gesù Children's Hospital IRCCS, Rome, Italy.
Corrado CecchettiDepartment of Emergency, Acceptance and General Pediatrics, Bambino Gesù Children's Hospital IRCCS, Rome, Italy.
Orsola GawronskiProfessional Development, Continuing Education and Research Unit, Medical Directorate, Bambino Gesù Children's Hospital IRCCS, Rome, Italy.ORCID 0000-0001-8686-5897

Funding

Ministero della Salute
6 · The paper itself

Abstract

aimExplore the care escalation process initiated by parents concerned about their hospitalised child's deterioration and healthcare providers' response to parental concerns.

designA qualitative study using Charmaz's constructivist grounded theory.

methodsParticipants included healthcare providers, cultural mediators and parents of children hospitalized for ≥ 3 days, who had experienced previous urgent intensive care admission or parental concern during hospitalization, in a tertiary pediatric hospital. Data were collected through focus groups, and analyzed using a grounded theory methodology with NVivo Software.

resultsA total of 13 parents, 7 cultural mediators and 68 healthcare providers participated in 16 focus groups. Two main categories were identified: (1) Parents navigating the uncertainty of the escalation system to get a response; (2) Healthcare providers balancing parents' concerns, their own situation awareness, escalation processes and team relations. We developed a Grounded theory called 'Parents Supporting Timely Escalation Processes' (P-STEP). By monitoring their children, parents identify early signs of deterioration and advocate for escalation. Reasons for concern are their child's behaviour, communication failure and admission on an off-service ward. Parents escalate by contacting ward providers, their child's specialist or the most trusted staff and, only selected parents, the Rapid Response Team. Staff escalate parents' concern according to their own situation awareness, parent evaluation and ward escalation practices. Parent's emotions and trust are influenced by the timeliness and type of staff response.

conclusionWhile some parents effectively advocate for their child, others face obstacles due to unclear and lack of formal care escalation systems. Understanding how parents escalate care and healthcare providers respond is essential to identify facilitators, barriers, key stakeholders, and implement a formal system for parent-initiated escalation of care. IMPLICATIONS FOR THE PROFESSION AND PATIENT CARE: Integrating parents into processes of escalation and rapid response systems could optimise early recognition and improve responsiveness in paediatric deterioration. REPORTING

methodThe study adheres to the COnsolidated criteria for REporting Qualitative research (COREQ) guidelines. PATIENT OR PUBLIC CONTRIBUTION: Parents and HCPs participated as interview respondents.

Indexed as

Child, HospitalizedClinical DeteriorationParentsProfessional-Family RelationsAdultChildChild, PreschoolFemaleFocus GroupsGrounded TheoryHumansInfantMaleQualitative Researchclinical deteriorationfamily‐Centred careparent‐initiated escalation of careparents

Identifiers

PMID40910576
PMCPMC12862508

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LicenceCC BY-NC-ND
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.