Evidence map›Paper›PMID 40905394›Full record

ArticleCancer medicine2025

Towards Inclusive Colorectal Cancer Screening: Experiences and Needs of Adults With Intellectual Disabilities.

Theresa Wagner, Alma R Herscovici, Amelie Fuchs, Sebastian Kabas, Mara Hilbert, Laura M König, Matthias Unseld, Elisabeth L Zeilinger

Abstract read
In one paragraph

Article in Cancer medicine, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Theresa WagnerDepartment of Clinical and Health Psychology, Faculty of Psychology, University of Vienna, Vienna, Austria.
Alma R HerscoviciDepartment of Clinical and Health Psychology, Faculty of Psychology, University of Vienna, Vienna, Austria.
Amelie FuchsDepartment of Clinical and Health Psychology, Faculty of Psychology, University of Vienna, Vienna, Austria.
Sebastian KabasDepartment of Clinical and Health Psychology, Faculty of Psychology, University of Vienna, Vienna, Austria.
Mara HilbertDepartment of Clinical and Health Psychology, Faculty of Psychology, University of Vienna, Vienna, Austria.
Laura M KönigDepartment of Clinical and Health Psychology, Faculty of Psychology, University of Vienna, Vienna, Austria.
Matthias UnseldDepartment of Clinical Research SBG, Academy for Ageing Research, Haus der Barmherzigkeit, Vienna, Austria.
Elisabeth L ZeilingerDepartment of Clinical and Health Psychology, Faculty of Psychology, University of Vienna, Vienna, Austria.

Funding

Österreichische Gesellschaft für Hämatologie und Medizinische Onkologie (ÖGHO)
6 · The paper itself

Abstract

introductionPeople with intellectual disabilities (ID) face significant barriers to healthcare and preventive cancer care, resulting in delayed cancer diagnosis and higher mortality rates. There is limited understanding of the factors that influence their participation in colorectal cancer (CRC) screening, particularly from their own perspectives. This study aimed to identify the barriers, facilitators, and needs of people with ID for an inclusive CRC screening programme from their own experiences and viewpoints.

methodsSemi-structured qualitative interviews and focus groups (N = 31) were conducted with adults with ID in Austria. Interviews and group discussions were audio recorded and transcribed verbatim. Thematic analysis was used as a flexible method to analyse the data.

resultsFive themes were identified from the data with each consisting of two to four sub-themes: (1) independence within individually adjusted scopes of arrangement and decision-making, (2) 'When it comes to health, I do it', (3) enhancing wellbeing, (4) seeing the person first, then their ID, and (5) deficits in resources and the healthcare system.

conclusionThe findings reveal significant barriers to healthcare and preventive cancer care for people with ID. The following practical implications were derived: Eliminating discrimination, improving accessibility, designing appropriate information and educational materials, implementing mandatory ID-specific training for health professionals, considering the importance of emotions and implementing ID-appropriate health services. Considering these aspects when developing inclusive cancer screening programmes is of paramount importance to promote equitable health and cancer prevention, especially for marginalised and vulnerable groups.

Indexed as

Colorectal NeoplasmsEarly Detection of CancerIntellectual DisabilityAdultAgedAustriaFemaleFocus GroupsHealth Services AccessibilityHealth Services Needs and DemandHumansMaleMiddle AgedQualitative Researchcolorectal cancer screeningearly detection of cancerhealthcare needsinclusionintellectual disabilitiesqualitative researchthematic analysis

Identifiers

PMID40905394
PMCPMC12409469

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.