Evidence map›Paper›PMID 40903211›Full record

ArticlePsycho-oncology2025

Living With Advanced Pancreatic Cancer: Patients' Experiences of Daily Life.

Jenny Bergqvist, Johanna Hök Nordberg, Kathrin Wode, Berit Sunde, Per Fransson, Britt-Marie Bernhardson

Abstract read
In one paragraph

Article in Psycho-oncology, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed.

  1. Article
  2. Review
  3. Exploring facilitators and barriers to the implementation of prehabilitation for individuals with pancreatic cancer: a survey of healthcare professionals.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026
    Article
  4. The value of FOLFIRINOX in advanced pancreatic cancer: balancing efficacy, toxicity, and quality of life.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026
    Article
  5. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Jenny BergqvistDepartment of Medical Epidemiology and Biostatistics, Karolinska Institutet, Stockholm, Sweden.ORCID 0000-0002-9875-7946
Johanna Hök NordbergDepartment of Neurobiology, Care Sciences and Society, Karolinska Institutet, Stockholm, Sweden.
Kathrin WodeDepartment of Neurobiology, Care Sciences and Society, Karolinska Institutet, Stockholm, Sweden.
Berit SundeDepartment of Upper Abdominal Diseases, Karolinska University Hospital and Division of Surgery and Oncology, Stockholm, Sweden.
Per FranssonDepartment of Nursing, Umeå University, Umeå, Sweden.
Britt-Marie BernhardsonDepartment of Neurobiology, Care Sciences and Society, Karolinska Institutet, Stockholm, Sweden.

Funding

Ekhaga FoundationGyllenberg FoundationThe Sjöberg Foundation
6 · The paper itself

Abstract

backgroundPancreatic cancer is often diagnosed in late stages of the disease with only a 10% 5-year survival. The disease is associated with complex symptoms and psychological distress.

aimsThe specific objective of this qualitative study was to explore patients' experiences of what symptoms and distress that had impact on their everyday life.

methodsWe interviewed 31 patients with advanced pancreatic cancer nested within a randomized controlled study, called MISTRAL, about their everyday life using a semi structured interview guide. For data analysis we used interpretive description as described by S. Thorne to capture the subjective experiences of a population with the intention of improving clinical practice.

resultsThree themes were identified from the interviews: "Unpredictability", "Psychological and social distress" and "Strategies for hope and normalization". Unpredictable and highly fluctuating levels of energy as well as psychological and social distress were reported as major concerns. Participants tried to normalize everyday life to maintain hope and cope with the situation.

conclusionsUnpredictable and highly fluctuating levels of energy and major psychological and social distress impact on patients' ability to cope with symptoms and treatment. Patient-centered care with interventions to reduce distress is important to improve quality of life among patients with advanced pancreatic cancer.

Indexed as

Activities of Daily LivingAdaptation, PsychologicalPancreatic NeoplasmsPsychological DistressQuality of LifeStress, PsychologicalAdultAgedAged, 80 and overFemaleHopeHumansInterviews as TopicMaleMiddle AgedQualitative Researchactivities in daily livingpancreas cancerpsychological distresspsycho‐oncologyquality of life

Identifiers

PMID40903211
PMCPMC12408248

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.