Evidence map›Paper›PMID 40900297›Full record

ArticleCanadian journal of public health = Revue canadienne de sante publique2026

A national atlas to improve the study of Canadians living with long COVID (post-COVID-19 condition).

Aisha Ahmad, Naveed Z Janjua, Lisa M Lix, Nahrain Warda, Daryl L X Fung, Anne Bhéreur, Pavlos Bobos, Sara Carazo, Simon Décary, Suzie Goulding and 10 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Canadian journal of public health = Revue canadienne de sante publique, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

20 authors.

Aisha AhmadDepartment of Medicine, Sinai Health and University Health Network, Toronto, ON, Canada.
Naveed Z JanjuaBritish Columbia Centre for Disease Control, University of British Columbia, Vancouver, BC, Canada.
Lisa M LixDepartment of Community Health Sciences, University of Manitoba, Winnipeg, MB, Canada.
Nahrain WardaDepartment of Medicine, Sinai Health and University Health Network, Toronto, ON, Canada.
Daryl L X FungGeorge and Fay Yee Centre for Healthcare Innovation, University of Manitoba, Winnipeg, MB, Canada.
Anne BhéreurDepartment of Family Medicine and Emergency Medicine, Faculty of Medicine, Université de Montréal, Montréal, QC, Canada.
Pavlos BobosSchool of Physical Therapy, Faculty of Health Sciences, Western University, London, ON, Canada.
Sara CarazoInstitut National de Santé Publique du Québec, Québec, QC, Canada.
Simon DécaryFaculty of Medicine and Health Sciences, Université de Sherbrooke, School of Rehabilitation, Research Centre of the CHUS, CIUSSS de L'Estrie-CHUS, Sherbrooke, QC, Canada.
Suzie GouldingCOVID Long-Haulers Canada, Ottawa, Canada.
Lorraine GravesPerson with Lived Experience, Vancouver, BC, Canada.
Gary GrootDepartment of Medicine, University of Saskatchewan, Saskatoon, SK, Canada.
Douglas P GrossDepartment of Physical Therapy, University of Alberta, Edmonton, AB, Canada.
Kiran Pohar ManhasHealth Evidence and Innovation, Alberta Health Services, Calgary, AB, Canada.
Candace D McNaughtonInstitute of Health Policy, Management and Evaluation, University of Toronto, Toronto, ON, Canada.
Elham RahmeDivision of Clinical Epidemiology, Department of Medicine, McGill University, Montréal, QC, Canada.
Beate SanderInstitute of Health Policy, Management and Evaluation, University of Toronto, Toronto, ON, Canada.
Hind SbihiBritish Columbia Centre for Disease Control, University of British Columbia, Vancouver, BC, Canada.
Amol A VermaInstitute of Health Policy, Management and Evaluation, University of Toronto, Toronto, ON, Canada.
Kieran L QuinnDepartment of Medicine, Sinai Health and University Health Network, Toronto, ON, Canada. kieran.quinn@sinaihealth.ca.ORCID http://orcid.org/0000-0002-1681-5170

Funding

CIHR 492634
6 · The paper itself

Abstract

objectivesTo develop a national atlas of (1) Canadian cohorts studying or with the potential to study adults living with long COVID (LC) and (2) harmonize provincial and territorial administrative datasets to facilitate the creation of validated case-ascertainment algorithms and foster national collaboration on LC research.

methodsWe conducted a multifaceted environmental scan that included a comprehensive literature search and a survey of members of Canada's national LC research network between August 21, 2023, and November 10, 2023. We identified provincial and territorial cohorts, including those that were linkable to administrative data and common data elements among administrative datasets.

resultsWe included 19 Canadian cohorts from five provinces (Alberta, British Columbia, Manitoba, Ontario, and Québec) containing data on over 580,000 adults. The majority of the cohorts measured sociodemographic data (e.g., age, sex) and measures of healthcare use, whereas equity-related measures such as gender, ethnicity, and race were limited. There was wide variability in the definitions of LC used across all cohorts. Comparable population-level administrative data are currently available in Alberta, British Columbia, Manitoba, Ontario, Québec, New Brunswick, Newfoundland and Labrador, Nova Scotia, and Saskatchewan.

conclusionCanada has a rich repository of LC datasets that are limited by variable definitions of LC and inadequate equity-related measures such as gender, ethnicity, and race. Standardization and diversification of these measures will facilitate efforts to study healthcare use and develop health policy to improve the care of Canadian adults living with LC at a population level.

Indexed as

Atlases as TopicCOVID-19AdultAgedCanadaCohort StudiesFemaleHumansMaleMiddle AgedNorth American PeopleAdministrative dataCase-ascertainment algorithmsCOVID-19Long COVIDPost-COVID-19 conditionPublic health

Identifiers

PMID40900297
PMCPMC13082389

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.