Evidence map›Paper›PMID 40895427›Full record

SynthesisFrontiers in rehabilitation sciences2025

Using photovoice to engage underserved children with neurodevelopmental disorders and their caregivers in health research: a mixed methods systematic review.

Miriam Gonzalez, Paul Y Yoo, Samantha E Noyek, Brooke MacLeod, Michelle Kee, Michelle Phoenix, Samantha K Micsinszki, Marion Knutson, Christine J Neilson, Roberta L Woodgate

Abstract readSystematic Review
In one paragraph

Synthesis in Frontiers in rehabilitation sciences, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Miriam GonzalezCollege of Nursing, Rady Faculty of Health Sciences, University of Manitoba, Winnipeg, MB, Canada.
Paul Y YooDivision of Neurosciences and Mental Health, SickKids Research Institute, The Hospital for Sick Children, Toronto, ON, Canada.
Samantha E NoyekDepartment of Pediatrics, McMaster University, Hamilton, ON, Canada.
Brooke MacLeodDepartment of Educational and Counselling Psychology, Faculty of Education, McGill University, Montreal, QC, Canada.
Michelle KeeCollege of Nursing, Rady Faculty of Health Sciences, University of Manitoba, Winnipeg, MB, Canada.
Michelle PhoenixSchool of Rehabilitation Science and CanChild, McMaster University, Hamilton, ON, Canada.
Samantha K MicsinszkiSchool of Rehabilitation Science and CanChild, McMaster University, Hamilton, ON, Canada.
Marion KnutsonPatient Advisors Network, Virtual Community of Practice for Patient/Caregiver Partners, Canada.
Christine J NeilsonNeil John Maclean Health Sciences Library, University of Manitoba, Winnipeg, MB, Canada.
Roberta L WoodgateCollege of Nursing, Rady Faculty of Health Sciences, University of Manitoba, Winnipeg, MB, Canada.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Introduction: Limited guidance exists for researchers wanting to use photovoice to engage children with neurodevelopmental disorders (NDDs), 0-25 years, and their caregivers in health research. This mixed-methods systematic review synthesized photovoice research with this population with attention to children and caregivers from diverse backgrounds. Diversity of study participants, research areas that have used photovoice with this population, feasibility considerations (adaptations, contextual considerations, practicality), and recommendations provided by study authors were of interest. Methods: We searched five databases and limited the search to English or French language publications. Eighteen studies met the inclusion criteria. We used a convergent integrated synthesis approach as well as qualitative content analysis to synthesize data from included studies. Results: The majority of children and caregivers in selected studies were white. Selected studies focused primarily on autism spectrum disorder ( Discussion: Our findings support using photovoice to explore the lived experience of this population, provide guidance to health and rehabilitation researchers seeking inclusive, person-centred approaches to engaging participants in research, and have direct implications for practice. Systematic Review Registration: https://osf.io/3xsak/.

Indexed as

arts-based methodcaregiverschildrenneurodevelopmental disordersphotovoiceunderserved

Identifiers

PMID40895427
PMCPMC12394231

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.