Evidence map›Paper›PMID 40891824›Full record

ArticleJournal of the American Geriatrics Society2025

The National Dementia Workforce Study: Development of Questionnaires for Home Care, Assisted Living, and Nursing Home Settings.

Joanne Spetz, Laura M Wagner, Elizabeth M White, Susan A Chapman, Winston Chiong, Esther M Friedman, Lauren B Gerlach, Krista L Harrison, Lauren J Hunt, Soo-Jeong Lee and 12 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of the American Geriatrics Society, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed.

  1. Strengthening Support for Immigrant Direct Care Workers: Recommendations from Experienced Direct Care Workers for People Living with Dementia.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2026
    Article
  2. Article
  3. The National Dementia Workforce Study: Overview.Journal of the American Geriatrics Society · 2025
    Article
  4. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

22 authors.

Joanne SpetzPhilip R. Lee Institute for Health Policy Studies, University of California, San Francisco, California, USA.ORCID 0000-0003-3112-5511
Laura M WagnerPhilip R. Lee Institute for Health Policy Studies, University of California, San Francisco, California, USA.
Elizabeth M WhiteDepartment of Health Services, Policy, and Practice, Brown University School of Public Health, Providence, Rhode Island, USA.ORCID 0000-0003-4175-8662
Susan A ChapmanPhilip R. Lee Institute for Health Policy Studies, University of California, San Francisco, California, USA.
Winston ChiongMemory and Aging Center, Weill Institute for Neurosciences, University of California, San Francisco, California, USA.
Esther M FriedmanInstitute for Social Research, University of Michigan, Ann Arbor, Michigan, USA.
Lauren B GerlachDepartment of Psychiatry, University of Michigan, Ann Arbor, Michigan, USA.ORCID 0000-0003-1943-0150
Krista L HarrisonPhilip R. Lee Institute for Health Policy Studies, University of California, San Francisco, California, USA.ORCID 0000-0001-5373-3011
Lauren J HuntPhilip R. Lee Institute for Health Policy Studies, University of California, San Francisco, California, USA.ORCID 0000-0002-2731-2173
Soo-Jeong LeeDepartment of Community Health Systems, School of Nursing, University of California, San Francisco, California, USA.ORCID 0000-0002-6686-355X
Ulrike MuenchPhilip R. Lee Institute for Health Policy Studies, University of California, San Francisco, California, USA.ORCID 0000-0003-0754-664X
Katherine PossinMemory and Aging Center, Weill Institute for Neurosciences, University of California, San Francisco, California, USA.
Alissa SidemanPhilip R. Lee Institute for Health Policy Studies, University of California, San Francisco, California, USA.
Johanna van Tyen Silbersack HickeyCecil G. Sheps Center for Health Services Research, University of North Carolina, Chapel Hill, North Carolina, USA.
Pongpat PutthinunMemory and Aging Center, Weill Institute for Neurosciences, University of California, San Francisco, California, USA.
Jarmin YehPhilip R. Lee Institute for Health Policy Studies, University of California, San Francisco, California, USA.
Sofia SandovalPhilip R. Lee Institute for Health Policy Studies, University of California, San Francisco, California, USA.
Amber RosePhilip R. Lee Institute for Health Policy Studies, University of California, San Francisco, California, USA.
Joanie RothsteinPhilip R. Lee Institute for Health Policy Studies, University of California, San Francisco, California, USA.
Amy R PettitIndependent Consultant, Boston, Massachusetts, USA.
Donovan T MaustDepartment of Psychiatry, University of Michigan, Ann Arbor, Michigan, USA.ORCID 0000-0003-4740-2640
Sheryl ZimmermanCecil G. Sheps Center for Health Services Research, University of North Carolina, Chapel Hill, North Carolina, USA.

Funding

The National Dementia Workforce StudyU54AG084520 · NIA · UNIVERSITY OF MICHIGAN AT ANN ARBOR · PI DONOVAN T MAUST · 2023 to 2026
$81.0M
Research Fellowship for Equity in Alzheimer's Disease and Brain HealthT32AG078115 · NIA · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI BRUCE L MILLER, VICTOR VALCOUR · 2022 to 2026
$1.7M
Building Primary Care Workforce Capacity in the Dementia Diagnostic ProcessR01AG087166 · NIA · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI SIDEMAN, ALISSA BERNSTEIN · 2024 to 2025
$1.6M
Mapping the Dynamics of Caregiver Burden in Alzheimer's DiseaseK01AG059840 · NIA · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI SIDEMAN, ALISSA BERNSTEIN · 2020 to 2024
$652k
NIA NIH HHS K01 AG059840NIA NIH HHS R01 AG087166NIA NIH HHS T32 AG078115NIA NIH HHS T32AG078115NIA NIH HHS U54 AG084520NIA NIH HHS U54AG084520
6 · The paper itself

Abstract

The growing aging population and rising prevalence of dementia are driving increased demand for long-term care services and supports in the United States. People with dementia require substantial support and care, often from direct care workers in private homes, assisted living communities, and nursing homes. Despite their crucial role, these workers receive highly variable training, particularly in dementia care, and face significant work-related challenges including stress, injury, and burnout. The National Dementia Workforce Study (NDWS), sponsored by the National Institute on Aging, was designed to include large-scale, nationally representative annual surveys of staff and administrators providing care to individuals with dementia in home care, assisted living, and nursing homes, and of community clinicians practicing across settings. NDWS will capture workforce demographics, training adequacy, job satisfaction, and their impact on dementia care quality. This report describes NDWS's rigorous process for questionnaire design for the initial wave of home care, assisted living, and nursing home surveys. Our survey development methods integrated literature reviews, validated questionnaire items, expert consultations, and cognitive interviews to ensure instrument reliability and validity. Resulting survey data will be available to researchers seeking to examine workforce conditions, training, and worker knowledge, and their impact on care for people with dementia. NDWS infrastructure will also allow researchers to link survey responses with administrative and medical claims data to examine how workforce dynamics and organizational factors are associated with outcomes for people with dementia over time, enabling insights into policies to improve dementia care training, workforce retention, and care delivery.

Indexed as

Assisted Living FacilitiesDementiaHome Care ServicesNursing HomesAgedFemaleHumansMaleSurveys and QuestionnairesUnited StatesWorkforcedementia care workforcedementia trainingdirect care workerslong‐term caresurvey design

Identifiers

PMID40891824
PMCPMC12407246

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.