ArticleApplied clinical informatics2025
Patient-Driven Sharing of Health Information: A National Effort to Advance Equitable Interoperability.
Article in Applied clinical informatics, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Authors and funding
8 authors.
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Abstract
The goal of national interoperability is to improve care quality and decrease administrative burden and costs. Patients, providers, and other stakeholders are increasingly concerned that indiscriminate sharing of data may have deleterious, permanent consequences, as well as fail to provide granular control over the sharing of individual health data. Data segmentation and consent standards to date have been limited in scope and implementation, which has hindered efforts to scale data sharing preferences. Shift, an independent expert stakeholder task force, has been convened to mature standards, terminologies, and consensus-driven implementation guidance, which are prerequisites for more robust policy drivers needed to support nationwide sensitive data segmentation and consent capabilities. This paper describes Shift's framework and processes as means to advance equitable interoperability.
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Registered trials
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