ArticleCureus2025
Exploring the Patient Experience in Behçet's Syndrome: A Two-Phase Qualitative Study Using a Biographical-Narrative Approach.
Article in Cureus, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
0 citing papers in PubMed.
No citing paper in PubMed yet.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Background Behçet's syndrome (BS) is a systemic autoimmune disease, classified among the vasculitides, with an unknown etiology. It significantly impacts the quality of life of those affected. Healthcare professionals must understand the characteristics of this syndrome to provide comprehensive care. Objectives The main objective of this study is to synthesize qualitative evidence on BS, and explore the life experiences of a person living with this condition, through a biographical-narrative account to inform clinical and psychosocial care strategies. Methods A two-phase study was conducted. Phase 1 involved a qualitative systematic review, including studies in English and Spanish, without restrictions on publication year. A search was conducted in the Medline, Web of Science, and Scopus databases. Themes and sub-themes were extracted to develop the interview guide. In Phase 2, a semi-structured interview was conducted with a woman diagnosed with BS, employing a biographical-narrative design. The interview was recorded, transcribed, and coded, and themes and sub-themes were identified using ATLAS.ti software (version 25.0.1; ATLAS.ti Scientific Software Development GmbH, Berlin, Germany). Results The themes (n = 3) and sub-themes (n = 7) identified in the interview were: coping and adaptation strategies (self-care and seeking support), interactions with the healthcare system (medical care and health education), and the experience of living with the disease (emotional well-being, physical discomfort, and vulnerability). Conclusions Qualitative literature on BS is limited and focused on adults, revealing gaps in care and psychosocial support. The testimonial collected highlights the everyday barriers faced by individuals with BS, and identifies key areas for clinical and psychosocial intervention. Further multidisciplinary qualitative research is recommended to improve diagnosis, treatment, and comprehensive support.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.