Evidence map›Paper›PMID 40876664›Full record

ArticleJournal of pain and symptom management2025

Proceedings of the First Neuropalliative Care Research Summit (NeuroCARES).

Claire J Creutzfeldt, Jori Bogetz, Carey Candrian, Kathryn L Colborn, Rita Caroline Crooms, Corey R Fehnel, Jori E Fleisher, Romana Hasnain-Wynia, Maria Hopfgarten, David Y Hwang and 10 more

Abstract readConference Proceedings
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of pain and symptom management, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

20 authors.

Claire J CreutzfeldtComprehensive Stroke Center at Harborview Medical Center, Department of Neurology, University of Washington Medical School, Seattle, Washington, USA. Electronic address: clairejc@uw.edu.
Jori BogetzComprehensive Stroke Center at Harborview Medical Center, Department of Neurology, University of Washington Medical School, Seattle, Washington, USA.
Carey CandrianComprehensive Stroke Center at Harborview Medical Center, Department of Neurology, University of Washington Medical School, Seattle, Washington, USA.
Kathryn L ColbornComprehensive Stroke Center at Harborview Medical Center, Department of Neurology, University of Washington Medical School, Seattle, Washington, USA.
Rita Caroline CroomsComprehensive Stroke Center at Harborview Medical Center, Department of Neurology, University of Washington Medical School, Seattle, Washington, USA.
Corey R FehnelComprehensive Stroke Center at Harborview Medical Center, Department of Neurology, University of Washington Medical School, Seattle, Washington, USA.
Jori E FleisherComprehensive Stroke Center at Harborview Medical Center, Department of Neurology, University of Washington Medical School, Seattle, Washington, USA.
Romana Hasnain-WyniaComprehensive Stroke Center at Harborview Medical Center, Department of Neurology, University of Washington Medical School, Seattle, Washington, USA.
Maria HopfgartenComprehensive Stroke Center at Harborview Medical Center, Department of Neurology, University of Washington Medical School, Seattle, Washington, USA.
David Y HwangComprehensive Stroke Center at Harborview Medical Center, Department of Neurology, University of Washington Medical School, Seattle, Washington, USA.
Benzi M KlugerComprehensive Stroke Center at Harborview Medical Center, Department of Neurology, University of Washington Medical School, Seattle, Washington, USA.
Heather E LeeperComprehensive Stroke Center at Harborview Medical Center, Department of Neurology, University of Washington Medical School, Seattle, Washington, USA.
Monica E LemmonComprehensive Stroke Center at Harborview Medical Center, Department of Neurology, University of Washington Medical School, Seattle, Washington, USA.
Susanne MuehlschlegelComprehensive Stroke Center at Harborview Medical Center, Department of Neurology, University of Washington Medical School, Seattle, Washington, USA.
Christine S RitchieComprehensive Stroke Center at Harborview Medical Center, Department of Neurology, University of Washington Medical School, Seattle, Washington, USA.
Altaf SaadiComprehensive Stroke Center at Harborview Medical Center, Department of Neurology, University of Washington Medical School, Seattle, Washington, USA.
Malenna SumrallComprehensive Stroke Center at Harborview Medical Center, Department of Neurology, University of Washington Medical School, Seattle, Washington, USA.
Lauren TreatComprehensive Stroke Center at Harborview Medical Center, Department of Neurology, University of Washington Medical School, Seattle, Washington, USA.
Ana-Maria VranceanuComprehensive Stroke Center at Harborview Medical Center, Department of Neurology, University of Washington Medical School, Seattle, Washington, USA.
Darin B ZahuranecComprehensive Stroke Center at Harborview Medical Center, Department of Neurology, University of Washington Medical School, Seattle, Washington, USA.

Funding

Neuropalliative Care Research SymposiumU13NS134263 · NINDS · UNIVERSITY OF WASHINGTON · PI CREUTZFELDT, CLAIRE JOHANNA · 2024 to 2024
$25k
NINDS NIH HHS U13 NS134263
6 · The paper itself

Abstract

Neuropalliative care is a rapidly evolving field of healthcare that is essential for addressing the complex needs of individuals with serious neurological disorders and their care partners. Effectively addressing these needs will require advances in Neuropalliative care research designed to improve the quality of life for all people affected by neurological disorders and their care-partners. On April 12, 2024, the first Neuropalliative Care Research Summit (NeuroCARES), funded by the National Institute of Neurological Disorders and Stroke (NINDS) and supported by the International Neuropalliative Care Society (INPCS), provided an opportunity for clinicians, researchers, representatives from NIH and patient and family advocates to come together to identify and discuss neuropalliative care research challenges and opportunities. The summit hosted 80 transdisciplinary researchers and clinicians from 47 institutions, including 25 virtual attendees. The conference featured three roundtable discussions, six scientific sessions, and two junior investigator mentoring workshops. Research priorities identified included: 1) developing strategies to address healthcare inequities; 2) increasing methodological rigor concerning data collection and intervention development; 3) increasing care partner involvement through initiatives such as Community Advisory Boards to ensure that research aligns with real-world needs; 4) utilizing big data to examine differences in neuropalliative care delivery across the U.S. healthcare system; 5) developing standardized metrics including common data elements and tailoring them to neuropalliative care; and 6) creating enhanced training, mentoring, and funding opportunities for early career neuropalliative care investigators. This article summarizes key takeaways and deliverables from the summit while emphasizing the need for a biopsychosocial approach to neuropalliative care.

Indexed as

Nervous System DiseasesBiomedical ResearchHumansPalliative CareQuality of LifeUnited Statesconference proceedingsNational Institutes of HealthNeuropalliative carepalliative care research

Identifiers

PMID40876664
PMCPMC12646496

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.