Evidence map›Paper›PMID 40874550›Full record

ArticleHealth expectations : an international journal of public participation in health care and health policy2025

Evaluation of a 'Research Methods' Training Course for Novice Lived Experience Researchers.

Andrew C Grundy, Anam Bhutta, Ashgan Mahyoub, Rebecca Jenkins, Sadia Mir, Jahanara Miah, Gail Faragher, Karina Lovell

Abstract read
In one paragraph

Article in Health expectations : an international journal of public participation in health care and health policy, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Andrew C GrundyDivision of Nursing, Midwifery and Social Work, School of Health Sciences, Faculty of Biology, Medicine and Health, University of Manchester; National Institute of Health and Care Research, Applied Research Collaboration-Greater Manchester (NIHR ARC-GM), Manchester, UK.ORCID 0000-0002-6562-6894
Anam BhuttaDivision of Nursing, Midwifery and Social Work, School of Health Sciences, Faculty of Biology, Medicine and Health, University of Manchester; National Institute of Health and Care Research, Applied Research Collaboration-Greater Manchester (NIHR ARC-GM), Manchester, UK.
Ashgan MahyoubDivision of Nursing, Midwifery and Social Work, School of Health Sciences, Faculty of Biology, Medicine and Health, University of Manchester; National Institute of Health and Care Research, Applied Research Collaboration-Greater Manchester (NIHR ARC-GM), Manchester, UK.ORCID 0009-0002-6980-2151
Rebecca JenkinsDivision of Nursing, Midwifery and Social Work, School of Health Sciences, Faculty of Biology, Medicine and Health, University of Manchester; National Institute of Health and Care Research, Applied Research Collaboration-Greater Manchester (NIHR ARC-GM), Manchester, UK.ORCID 0000-0002-1325-1939
Sadia MirDivision of Nursing, Midwifery and Social Work, School of Health Sciences, Faculty of Biology, Medicine and Health, University of Manchester; National Institute of Health and Care Research, Applied Research Collaboration-Greater Manchester (NIHR ARC-GM), Manchester, UK.
Jahanara MiahMental Health Research for Innovation Centre (M-RIC), Mersey Care NHS Foundation Trust and the University of Liverpool, Liverpool, UK.ORCID 0000-0002-2122-7007
Gail FaragherMental Health Research for Innovation Centre (M-RIC), Mersey Care NHS Foundation Trust and the University of Liverpool, Liverpool, UK.
Karina LovellDivision of Nursing, Midwifery and Social Work, School of Health Sciences, Faculty of Biology, Medicine and Health, University of Manchester; National Institute of Health and Care Research, Applied Research Collaboration-Greater Manchester (NIHR ARC-GM), Manchester, UK.

Funding

This is independent work supported by the National Institute for Health and Care Research (NIHR) Applied Research Collaboration-Greater Manchester (ARC-GM) and the NIHR Office for Life Sciences (OLS).
6 · The paper itself

Abstract

backgroundThe training of lived experience researchers (LERs) for involvement in research design and conduct is a key principle to its success. However, little is known about what research methods training is acceptable and beneficial to novice LERs.

methodsA training evaluation using a slightly modified version of the Training Acceptability Rating Scale (TARS), and a concluding stakeholder engagement workshop. Responses to the quantitative items were summarised using descriptive statistics, and qualitative responses were coded using content analysis. RESULTS/

findingsThe trainees rated the overall training favourably (median overall TARS = 54/63; median acceptability = 31/36; median perceived impact = 23/27), but there was slight variation between sessions. There were six qualitative themes: valued learning format; valuing research knowledge; valued the centring of lived experience; gaps in training provision; more lived experience research focussed; and consider further support of LERs.

conclusionsThe training was found to be acceptable and beneficial, with trainees particularly valuing lived experience facilitation, case studies and tailored content. Trainees suggested the training could be improved by addressing theoretical, existential and skills gaps, and by making it more lived experience research focussed throughout. PATIENT OR PUBLIC CONTRIBUTION: This training evaluation and engagement workshop project was developed and overseen by a long-term service user with lived experience of mental distress. The workshop topic guide was co-designed with four people with lived experience, who were also involved in data analysis and co-constructed the findings. Finally, this paper concludes with a commentary on this study provided by a trainee with lived experience.

Indexed as

Research DesignResearch PersonnelAdultFemaleHumansMaleQualitative Research

Identifiers

PMID40874550
PMCPMC12392132

What OpenQuestion holds

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.