Evidence map›Paper›PMID 40865729›Full record

ArticleJournal of the American Academy of Dermatology2025

Establishment of standardized definitions and a core set of outcome characteristics following hidradenitis suppurativa surgery developed by an expert Delphi consensus.

Linnea L Westerkam, Hessel H van der Zee, Falk G Bechara, Stephanie Goldberg, Gregor B Jemec, Julie Caffrey, Abigail Chaffin, Ernest S Chiu, Lynn Damitz, Steven Daveluy and 21 more

Abstract readConsensus Statement
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of the American Academy of Dermatology, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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0citing papers in PubMed
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1 · What the graph read from it

What it found

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2 · The registry

The trial behind it

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3 · Its place in the literature

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4 · The record

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5 · Who and what money

Authors and funding

31 authors.

Linnea L WesterkamSchool of Medicine, University of North Carolina, Chapel Hill, North Carolina. Electronic address: linnealw@gmail.com.
Hessel H van der ZeeDepartment of Dermatology, Erasmus University Medical Center, Rotterdam, The Netherlands.
Falk G BecharaDepartment of Dermatology, Venerology, and Allergology, Ruhr-University Bochum, Bochum, Germany; ICH-International Center for Hidradenitis Suppurativa/Acne Inversa, Ruhr-University Bochum, Bochum, Germany.
Stephanie GoldbergMary Washington Healthcare, Fredericksburg, Virginia.
Gregor B JemecDepartment of Dermatology, Zealand University Hospital, Roskilde, Denmark; Department of Clinical Medicine, University of Copenhagen, Faculty of Health and Medical Sciences, Copenhagen, Denmark.
Julie CaffreyDepartment of Plastic and Reconstructive Surgery, Johns Hopkins University, Baltimore, Maryland.
Abigail ChaffinChief of Division of Plastic Surgery, Tulane University, New Orleans, Louisiana.
Ernest S ChiuDepartment of Dermatology, New York University Langone Health, NYC, New York, New York.
Lynn DamitzDivision of Plastic and Reconstructive Surgery, University of North Carolina, Chapel Hill, North Carolina.
Steven DaveluyDepartment of Dermatology, Wayne State University, Dearborn, Michigan.
Amit GargNorthwell, New Hyde Park, New York.
Ralph GeorgeDepartment of Surgery, University of Toronto, Toronto, Canada.
Philippe GuillemDepartment of Surgery, Clinique du val d'ouest, Lyon, France; European Hidradenitis Suppurativa Foundation, Dessau, Germany.
Iltefat H HamzaviMulticultural Dermatology Center, Department of Dermatology, Henry Ford Hospital, Detroit, Michigan.
Paul G HazenSchool of Medicine, Case-Western Reserve University, Cleveland, Ohio.
Barbara HorvathDepartment of Dermatology, University Medical Center Groningen, University of Groningen, Groningen, The Netherlands.
John R IngramDivision of Infection and Immunity, Cardiff University, Cardiff, UK.
Joslyn S KirbyIncyte Corporation, Wilmington, Delaware; Department of Dermatology, Penn State Health, Hershey, Pennsylvania.
Lukasz MatusiakDepartment of Medicine, Wroclaw University of Science and Technology, Wroclaw, Poland; Faculty of Medicine, Wroclaw University of Science and Technology, Wroclaw, Poland; Department of Dermato-Venereology, Fourth Military Clinical Hospital, Wroclaw, Poland.
Lauren A V OrensteinDepartment of Dermatology, School of Medicine, Emory University, Atlanta, Georgia.
Dennis P OrgillBrigham and Women's Hospital, Harvard Medical School, Boston, Massachusetts.
Venessa Pena-RobichauxUniversity of Texas Dell Medical School, Austin, Texas.
Maurizio PoddaDepartment of Dermatology, Medical Center Klinikum Darmstadt, Teaching Hospital Goethe-University Frankfurt, Darmstadt, Germany.
Errol PrensDepartment of Dermatology, Erasmus University Medical Center, Rotterdam, The Netherlands.
Barry ResnikDr. Phillip Frost Department of Dermatology and Cutaneous Surgery, Miller School of Medicine, University of Miami, Miami, Florida.
Ditte Marie Lindhardt SaunteDepartment of Dermatology, Zealand University Hospital, Roskilde, Denmark; Department of Clinical Medicine, University of Copenhagen, Faculty of Health and Medical Sciences, Copenhagen, Denmark.
Drew K SaylorDepartment of Dermatology, University of California San Francisco, Berkeley, California.
Linnea ThorlaciusDepartment of Dermatology, Zealand University Hospital, Roskilde, Denmark.
Bente VillumsenDanish HS Patients' Association, Søborg, Denmark.
Allard R J V VossenDepartment of Dermatology, Erasmus University Medical Center, Rotterdam, The Netherlands.
Christopher J SayedDepartment of Dermatology, University of North Carolina, Chapel Hill, North Carolina.

Funding

Evaluation of the Genetics of Hidradenitis SuppurativaR21AR075996 · NIAMS · UNIV OF NORTH CAROLINA CHAPEL HILL · PI LI, YUN, MOHLKE, KAREN L. · 2020 to 2021
$306k
NIAMS NIH HHS R21 AR075996
6 · The paper itself

Abstract

backgroundHidradenitis suppurativa (HS) is a chronic inflammatory skin condition often requiring surgical intervention for definitive treatment. Previous studies evaluated postsurgical outcomes, but no standardization exists for collection and nomenclature for HS surgical outcomes.

objectiveTo characterize and define surgical outcome terminology.

methodsA modified Delphi protocol was used to reach consensus on data to collect and terms to describe outcomes following HS surgical procedures. A five-member steering committee created preliminary definitions and surveys, which were distributed via Qualtrics to a group of international HS experts. A nine-point Likert scale was used, and a score of at least 7 was needed for an item to reach agreement.

resultsTwenty-five dermatologists and general and plastic surgeons participated in the Delphi study. Following 2 rounds of surveys and feedback, the consensus terminology to describe outcomes included surgical site and regional persistence and progression. Consensus was also reached on key features to report as part of each outcome. LIMITATIONS: Limitations include narrow scope and small number of participants from limited geographical areas.

conclusionSurgery persistence and progression definitions were agreed upon by a group of international HS experts. This consensus is a first step toward standardizing terminology and reporting for HS surgical outcomes.

Indexed as

Dermatologic Surgical ProceduresHidradenitis SuppurativaTerminology as TopicDelphi TechniqueHumansTreatment OutcomeDelphi consensushidradenitis suppurativasurgery outcomes

Identifiers

PMID40865729
PMCPMC12575009

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