ArticleBMC health services research2025
The real-time experiences of older people with dementia, informal caregivers and professional caregivers during the transition from home to a nursing home: multiple longitudinal cases.
Article in BMC health services research, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers, 1 of them a synthesis that pooled it.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
4 citing papers in PubMed, 1 synthesis or guideline pooled it.
- The impact of medication management interventions on healthcare utilisation in people with dementia: a systematic review with meta-analysis.Age and ageing · 2026Pooled it
- Identifying the facilitators and barriers of a healthy transition for adult children when an older parent is transferred to a nursing home: a narrative approach.BMC primary care · 2026Article
- Multimorbidity research in dementia: it's time to shift to a person-centred approach.Frontiers in dementia · 2026Article
- Experiences of members of the care triad on transitioning from home to a nursing home: a qualitative study.BMC geriatrics · 2025Article
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Authors and funding
8 authors.
Funding
Abstract
backgroundRetrospective research has shown that the transition from home to a nursing home is a complex and often fragmented care process, which can lead to negative outcomes for the entire care triad: older people with dementia, informal caregivers, and professional caregivers. At present, comprehensive and real-time research covering the entire transitional care process is lacking in the literature. This study aimed to follow the experiences of the care triad during the transition from home to a nursing home in real time.
methodsThis real-time, multiple-case study employed the patient journey mapping methodology. Participants were recruited in the province of Limburg, the Netherlands, through partner healthcare organisations affiliated with the Living Lab in Ageing and Long-Term Care. Five care triads were included, each consisting of an older person with dementia awaiting nursing home placement, their informal caregivers, and the professional caregivers involved in the transition process. A total of 26 participants were interviewed. Data were collected between October 2021 and March 2023 through semi-structured interviews, follow-up moments, and detailed logbooks. Data analysis involved both individual and cross-case analysis.
resultsCare triads experienced an overarching sense of uncontrollability throughout the transition process. This was linked to three key factors. First, dependency within the care triad was marked by each participant feeling reliant on others. Second, transitions were crisis-driven rather than planned, as participants struggled to identify the right timing. This was influenced by uncertainty, societal taboos, and government policy. Third, the transition process was largely discontinued, with different professionals responsible for separate parts of the process and the dementia case manager becoming absent after the move.
conclusionPolicymakers and professional caregivers should collaborate to establish a more gradual transition process. Professional caregivers should adopt a guiding role and ensure continuity of care after the move. Future research should explore how to empower care triads throughout the transition from home to a nursing home.
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