Evidence map›Paper›PMID 40853190›Full record

ArticleJournal of neuromuscular diseases2026

Bullying experiences of youth with neuromuscular disorders and their well-being: A survey study.

Christina Ippolito, Marc-Olivier Deguise, Hanns Lochmüller, Hugh J McMillan, Laura McAdam

Abstract read
In one paragraph

Article in Journal of neuromuscular diseases, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
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1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Christina IppolitoBloorview Research Institute, Holland Bloorview Kids Rehabilitation Hospital, Toronto, Canada.ORCID 0000-0003-2217-7790
Marc-Olivier DeguiseDivision of Neonatology, Children's Hospital of Eastern Ontario, Ottawa, Canada.ORCID 0000-0002-3802-1195
Hanns LochmüllerBrain and Mind Research Institute, University of Ottawa, Ottawa, Canada.
Hugh J McMillanChildren's Hospital of Eastern Ontario, Ottawa, Canada.
Laura McAdamBloorview Research Institute, Holland Bloorview Kids Rehabilitation Hospital, Toronto, Canada.ORCID 0000-0002-4650-7232

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

purposeBullying is a widespread problem in Canada and throughout the world. Children and youth with chronic illnesses or physical disabilities are more likely to be targets of bullying of all kinds. However, there is a paucity of research about bullying involving youth with neuromuscular disorders. The study aimed to assess the prevalence of bullying in youth with neuromuscular disorders and how bullying rates impact their quality of life and well-being.

methodsAn online survey was administered at a single timepoint to youth with a neuromuscular disorder. The survey captured data about demographics, bullying frequency, quality of life, and emotional well-being. Descriptive statistics summarized demographic and bullying data. Spearman rank correlations measured the relationships between bullying prevalence and quality of life/well-being.

resultsTwenty-nine participants completed the survey (22 male; mean age = 13 years, 10.8 months (SD = 2 years, 10.8 months). Twenty-four of 29 participants (82.8%) had been bullied at some point in their life. Participants reported being bullied most frequently for their appearance and their disability. Bullying did not correlate with quality of life and well-being.

conclusionsParticipants with neuromuscular disorders reported high rates of bullying without impacts on quality of life and well-being. We posit participants exhibit resilience.

Indexed as

BullyingNeuromuscular DiseasesQuality of LifeAdolescentCanadaChildFemaleHumansMalePsychological Well-BeingSurveys and Questionnairesbullyingdisabilitymuscular dystrophyneuromuscularspinal muscular atrophyyouth

Identifiers

PMID40853190
PMCPMC13438988

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.