ArticleCancer medicine2025
Thematic Analysis of Clinician Documentation Surrounding Treatment Discussions and Decision-Making in Patients With Desmoid Tumors.
Article in Cancer medicine, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
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Who cites it
2 citing papers in PubMed.
- Exploiting signal transduction pathways for cancer therapy: insights from natural products in preclinical models.Frontiers in pharmacology · 2026Review
- Thematic Analysis of Clinician Documentation Surrounding Treatment Discussions and Decision-Making in Patients With Desmoid Tumors.Cancer medicine · 2025Article
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Authors and funding
5 authors.
Funding
Abstract
backgroundDesmoid tumors are benign tumors without metastatic potential. While progression is rarely life-threatening, it is often life-affecting with significant morbidity. The rarity of desmoid tumors and the inability to accurately predict their natural history lead to challenges in developing treatment algorithms or formulaic discussions to address treatment options with patients.
aimsTo better understand this process, we performed a qualitative study of clinician documentation for patients with desmoid tumors to identify themes and areas for improvement.
methodsAn institutional database search was used to identify patients with desmoid tumors seen from 2018 to 2023. Documentation entries in the electronic health record (EHR) were reviewed, and passages pertaining to treatment were abstracted and explored using inductive thematic analysis.
resultsNinety-five patients were identified. Generated themes included (1) balancing uncertainty and ambiguity with hope, (2) empowerment through patient-initiated treatment discussions, (3) maintaining an active lifestyle and mitigating psychosocial distress, and (4) fostering longitudinal clinician-patient relationships and building trust.
conclusionsThe current analysis of documentation pertaining to treatment for patients with desmoid tumors provides insight into clinician-patient discussions and decisions in a real-world clinical setting. The emergent themes provide novel guidance and support for optimizing treatment discussions and decisions. More robust community peer support groups specific to patients with desmoid tumors and clinician "support groups" may provide a way for both patients and clinicians practicing in a disease state with uncertainty to share experiences and improve resilience. Developing treatment educational materials for patients and families and improving access to supportive psychosocial services may further enhance high-quality decision-making.
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Registered trials
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