SynthesisJournal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association2025
Benefits and Burdens of Research Participation: A Mixed Methods Systematic Review in Palliative and End-of-Life Care.
Synthesis in Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
1 citing paper in PubMed.
- Grief after the death of a close relative: a study of associated factors and perceptions of bereavement support.BMC palliative care · 2026Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors.
Funding
Abstract
Research participation of hospice and palliative care patients and family caregivers is essential to develop and test best practices. Yet, healthcare professionals are often hesitant to ask patients and caregivers to participate in research, fearing it is too intrusive or unethical during a sensitive time. This review focused on the motivating factors, benefits, and burdens of research participation for patients with serious illness and their family caregivers. Using the Preferred Reporting Items for Systematic Reviews and Meta-Analyses Checklist, searches were conducted in 4 online databases for articles between January 1, 2015 and January 31, 2024. The team reviewed 3169 articles; 28 met inclusion criteria and findings were extracted and synthesized using the Joanna Briggs Institute's mixed-method systematic reviews methodology following evaluation of each study. Results suggest greater benefits than burdens, reporting value in participation even when a burden is experienced. Burdens point to important social determinants of health concerns in research participation. For clinicians and researchers, connecting patients and caregivers to palliative and end-of-life research may be both beneficial as a contribution to scientific literature and as an additional source of ongoing support.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.