ArticleJournal of perinatology : official journal of the California Perinatal Association2025
Prenatal counseling for heart disease: Perception of understanding and communication gaps.
Article in Journal of perinatology : official journal of the California Perinatal Association, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.
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Who cites it
2 citing papers in PubMed.
- Parental perspectives on neurodevelopmental risk communication and care coordination in congenital heart disease: a nationwide survey in France.European journal of pediatrics · 2026Article
- Enhancing Fetal Cardiac Care: Addressing Unwarranted Variation in Prenatal Congenital Heart Disease Detection and Counseling.Current cardiology reports · 2026Review
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4 authors.
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Abstract
backgroundResearch on parental understanding following prenatal counseling for congenital heart disease (CHD) is limited. We aimed to evaluate parental knowledge of their fetus' CHD diagnosis and congruence between physician's and parent's assessments of parental understanding.
methodsPaired surveys of pediatric cardiologists and parents of fetuses requiring neonatal heart surgery assessed parental knowledge and perceived understanding of diagnosis, treatment and complications. Gwet's agreement coefficients (GAC) were used to examine congruence.
resultsThere was good congruence between 40 participating parents and cardiologists regarding knowledge of the diagnosis (GAC 0.89), need for neonatal surgery (GAC 0.81), need for further surgeries and lifelong care (GAC 0.66 and 0.65). While cardiologists perceived parents understood risk of mortality and neurodevelopmental outcomes, parental knowledge was poor (GAC -0.04 and 0.05, respectively).
conclusionFor many aspects of counseling, parental knowledge is congruent with cardiologist's perceptions; however, communication gaps exist for knowledge of mortality and other longer-term outcomes.
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