ArticleHealthcare informatics research2025
Korea's Bio Big Data Project: Importance and Challenges of Governance and Data Utilization.
Article in Healthcare informatics research, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
2 citing papers in PubMed.
- Genome-based medicine in Korea: the Korea National Institute of Health infrastructure for precision medicine.Childhood kidney diseases · 2026Review
- Conditional trust as a driver of public engagement in Korea's national project of bio-big data.Frontiers in genetics · 2025Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors.
Funding
Abstract
objectivesThe Korean government has been developing the National Integrated Biological Data Construction Project (NIBDCP) for over a decade, aiming to establish a comprehensive framework for the collection, production, provision, and utilization of biological data. This study examines the project's structure, features, and governance framework to identify key recommendations for successful implementation.
methodsA systematic analysis of the NIBDCP was conducted, focusing on governance structures, data management protocols, and operational systems. The evaluation emphasized institutional roles, consent requirements, sustainable data production, and researcher accessibility, identifying areas for improvement.
resultsThe analysis identified four critical areas requiring enhancement. First, the governance framework should empower the Secretariat to clearly define institutional responsibilities and facilitate inter-agency collaboration. Second, data collection protocols must address broad consent requirements, including provision of adequate information, explicit consent for secondary use, itemized withdrawal options, protection of minors' rights, and improved participant convenience. Third, establishing a systemic and sustainable data production framework is essential, with an emphasis on data quality, standardization, and scalability. Finally, the system for data provision and utilization should enhance researcher accessibility by ensuring data openness, maintaining a unified Institutional Review Board system, and streamlining application and usage processes.
conclusionsStrengthening governance, upholding ethical standards in data collection, ensuring sustainable data production, and optimizing researcher accessibility are essential for the success of the NIBDCP. These measures will help achieve the project's goals and establish a robust model for biological data governance and utilization in Korea.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.