ArticleHealth expectations : an international journal of public participation in health care and health policy2025
'It Would've Been Nice to Know About Allied Health Earlier': Insights From People With Parkinson's Disease.
Article in Health expectations : an international journal of public participation in health care and health policy, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
2 citing papers in PubMed.
- Article
- Factors influencing activity performance and participation in usual life situations among people with Parkinson's disease: a mixed methods study.Disability and rehabilitation · 2026Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
Abstract
introductionAllied health interventions can improve impairments and quality of life for people with Parkinson's disease (PwPD). However, allied health services are underutilised, and PwPD encounter barriers when accessing allied health. This study examined the allied health referral patterns of PwPD in New South Wales, Australia, from their perspective.
methodsCommunity-dwelling PwPD and their care-partners (CPs) were recruited. Participants completed a questionnaire, two-stage semi-structured interviews and a structured retrospective chart to track their PD journey.
resultsEighteen PwPD and five CPs participated, including six from culturally and linguistically diverse (CALD) backgrounds, two of whom required an interpreter. The Levesque model of healthcare access was utilised to describe this study's themes. The approachability and appropriateness of allied health services varied, as did participants' ability to perceive the need for services. CALD participants' fluency in English further impacted their perceptions, and they often found traditional medicine more acceptable. Health service availability was limited, particularly when accessing multidisciplinary care and in regional areas. Participants who lived alone or did not drive had limited ability to reach services. A lack of affordable services and limited ability to pay contributed to difficulties accessing allied health interventions; this could be somewhat relieved by funding packages. The ability to seek and engage in healthcare was present in all participants.
conclusionsPwPD recognise the need for allied health but experience barriers when accessing care, resulting in them not receiving the recommended early, regular and ongoing allied healthcare. Funding arrangements should be reviewed to enable this. PATIENT OR PUBLIC CONTRIBUTION: People with Parkinson's disease and their care-partners generated the findings of this study through their interviews and retrospective charts. They provided feedback on results via member checking of their transcripts. CLINICAL
trial registrationNot applicable.
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Registered trials
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