Evidence map›Paper›PMID 40836956›Full record

ArticleTopics in early childhood special education2025

Part C Early Intervention Procedural Safeguard Notices: Are They Supporting Parents to Understand Their Rights?

Lauren M Cycyk, Madeleine Griffin, Margaret Gillis, Ruby Batz, Veronica I Underwood Carrasco, Savannah Wease, Sam Lim, Natalia Jade, Katharine E Zuckerman

Abstract read
In one paragraph

Article in Topics in early childhood special education, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Lauren M CycykUniversity of Oregon, Eugene, USA.ORCID 0000-0001-9356-8145
Madeleine GriffinUniversity of Oregon, Eugene, USA.ORCID 0000-0003-3541-1152
Margaret GillisSRI International, Menlo Park, CA, USA.
Ruby BatzUniversity of Oregon, Eugene, USA.
Veronica I Underwood CarrascoOregon Health & Science University, Portland, USA.
Savannah WeaseUniversity of Oregon, Eugene, USA.
Sam LimUniversity of Oregon, Eugene, USA.
Natalia JadeUniversity of Oregon, Eugene, USA.
Katharine E ZuckermanOregon Health & Science University, Portland, USA.

Funding

Addressing Structural Disparities for Children with Early Communication Disorders (ASCEND)– Diversity SupplementR01DC020402 · NIDCD · OREGON HEALTH & SCIENCE UNIVERSITY · PI Lauren M. Cycyk, Katharine Elizabeth Zuckerman · 2022 to 2026
$3.7M
Addressing Structural Disparities in Autism Spectrum Disorder through Analysis of Secondary Data (ASD3)R01MH134177 · NIMH · OREGON HEALTH & SCIENCE UNIVERSITY · PI Olivia J Lindly, Katharine Elizabeth Zuckerman · 2023 to 2026
$3.3M
NIDCD NIH HHS R01 DC020402NIMH NIH HHS R01 MH134177
6 · The paper itself

Abstract

A family-centered early intervention (EI) approach mandated by the Individuals with Disabilities Education Act (IDEA) Part C, means involving parents fully in EI and ensuring they know their legal rights and responsibilities for participating. However, many parents report difficulty accessing information and decision-making in EI. IDEA mandates all jurisdictions provide parents with a procedural safeguard notice (PSN) outlining parents' rights and advocacy processes. Yet, it is unclear to what extent PSNs are accessible, particularly to parents with marginalized identities. This study analyzed PSNs from 56 Part C jurisdictions for the components required by law, understandability to the general public, and availability in multiple languages. The PSNs generally did not include all required information, necessitated grade-levels above high school, minimally attended to plain language, and were infrequently available in non-English languages, suggesting that many parents are prevented from information about EI. PSNs, therefore, are a source of bias in Part C.

Indexed as

children with disabilitiesdisability populationsfamiliesIDEAPolicy issuessystems change

Identifiers

PMID40836956
PMCPMC12362419

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.