ArticleNutrition in clinical practice : official publication of the American Society for Parenteral and Enteral Nutrition2026
"It's just us": Families' experiences with temporary tube feeding.
Article in Nutrition in clinical practice : official publication of the American Society for Parenteral and Enteral Nutrition, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
2 citing papers in PubMed.
- Clinician insights into pediatric temporary feeding tube management: Unseen barriers, unclear roles revealed from a prospective mixed methods study.Nutrition in clinical practice : official publication of the American Society for Parenteral and Enteral Nutrition · 2026Article
- "It's just us": Families' experiences with temporary tube feeding.Nutrition in clinical practice : official publication of the American Society for Parenteral and Enteral Nutrition · 2026Article
Corrections and comments
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Authors and funding
5 authors.
Funding
Abstract
backgroundChildren with temporary feeding tubes are discharged home with increasing frequency, yet little is known about how families adapt and manage in their home environment. Whereas the physical side effects of temporary feeding tubes are well documented, the psychosocial impact on families remains underresearched. Understanding families' evolving needs is critical to improving care and reducing caregiver burden.
aimTo explore parents' experiences of caring for children with temporary feeding tubes, from insertion to removal and to identify their challenges and evolving needs.
methodsA longitudinal qualitative descriptive design was used. Parent participants completed diaries and semistructured interviews across three key time points in their child's tube feeding journey (initial, maintenance, final) over a 4-month period. Inductive content analysis was used to analyze data.
resultsThirty-six parent participants completed 81 interviews and 223 diary entries, documenting their experiences over time. An integrative theme identified was families' critical need for ongoing support. Parents were unprepared for tube feeding and faced persistent challenges managing the feeding tube. Their journey transformed from initial uncertainty to self-taught expertise, as they adapted to changing demands. Their need for professional and peer support remained constant throughout.
conclusionThese findings underscore the need for systematic improvements, including structured education, consistent follow-up, accessible clinical expertise, and support across the tube feeding journey. Addressing these gaps could improve family well-being, reduce healthcare inequities, and enhance clinical outcomes.
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Registered trials
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