Evidence map›Paper›PMID 40831363›Full record

ArticleThe American journal of hospice & palliative care2026

Improving Community-Based Palliative Care Explanations: Insights From Persons Declining Services.

Kira G Sheldon, Kathryn H Bowles, Elizabeth A Luth

Abstract read
In one paragraph

Article in The American journal of hospice & palliative care, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors.

Kira G SheldonInstitute for Health, Health Care Policy and Aging Research, Rutgers University, New Brunswick, NJ, USA.ORCID 0009-0006-7076-469X
Kathryn H BowlesUniversity of Pennsylvania School of Nursing, Philadelphia, PA, USA.ORCID 0000-0001-7740-5725
Elizabeth A LuthDepartment of Family Medicine and Community Health, Robert Wood Johnson Medical School, Rutgers University, New Brunswick, NJ, USA.ORCID 0000-0003-1496-1235

Funding

Transforming residential palliative care for persons with dementia through behavioral economics and data scienceP30AG064105 · NIA · UNIVERSITY OF PENNSYLVANIA · PI KARLAWISH, JASON H · 2019 to 2023
$3.8M
NIA NIH HHS P30 AG064105
6 · The paper itself

Abstract

BackgroundA growing number of older adults in the United States have multiple chronic conditions which contribute to decreased functional ability and increased healthcare utilization. Unmet supportive care needs place considerable strain on caregivers, particularly of persons living with dementia. Community-based palliative care can help seriously ill individuals manage their conditions and improve their quality of life. How palliative care staff explain these services to older adults and caregivers can impact engagement with palliative care.ObjectivesTo explore knowledge of palliative care among older adults and caregivers in a Medicare Advantage population, including dementia caregivers, and identify areas for improving education and explanations.MethodsSemi-structured interviews were conducted with seriously ill Medicare Advantage plan beneficiaries and caregivers (n = 22) who declined the plan's palliative care program in the past year. Focus groups were conducted with palliative care staff (n = 5).ResultsBeneficiaries and caregivers had mixed understandings of palliative care, including: no knowledge, belief that it was the same as or pre-hospice, and accurate, but often one-dimensional understandings of it. Participants recommended providing individualized, tailored explanations focused on the person's health concerns in simple language with follow-up materials to improve engagement with palliative care.ConclusionsSmall adjustments to how palliative care is explained may increase understanding among older adults and caregivers, particularly among those with limited or inaccurate knowledge. Among those familiar with palliative care, providing accessible and clear explanations customized to the person's specific care needs can further broaden understanding and increase perceived relevance.

Indexed as

CaregiversCommunity Health ServicesHealth Knowledge, Attitudes, PracticePalliative CareAgedAged, 80 and overDementiaFemaleFocus GroupsHumansMaleMedicare Part CMiddle AgedUnited Statescaregiversdelivery of health careMedicare part Colder adultspalliative carepatient acceptance of health care

Identifiers

PMID40831363
PMCPMC12421774

What OpenQuestion holds

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Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.