Evidence map›Paper›PMID 40830776›Full record

ArticleBMC public health2025

Assessing the impact of day programs on individuals living with dementia and their family/friend caregivers (AIDA-DemCare): protocol of a prospective cohort study combined with a qualitative evaluation.

Matthias Hoben, Andrea Ubell, Colleen J Maxwell, Saleema Allana, Malcolm B Doupe, Holly Symonds-Brown, David B Hogan, Tamara Daly, Kaitlyn C Tate, Adrian Wagg and 14 more

Registry-linked trialAbstract readClinical Trial Protocol
PubMed Full text at PMC Publisher
In one paragraph

Article in BMC public health, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06496945 (Assessing the Impact of DAy Programs on Individuals Living with Dementia and Their Family/friend Caregivers), which is not on this map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT06496945 recruitingnot on this map

Assessing the Impact of DAy Programs on Individuals Living with Dementia and Their Family/friend Caregivers (AIDA-DemCare)

Typeobservational_patient_registrySponsorYork UniversityRan2024 to 2027Enrolled3,000ConditionsAdult Day Programs, Continuing Care, Old Age, DementiaArmsAdult day program use, Other community care (non-attendees)
3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

24 authors.

Matthias HobenSchool of Health Policy and Management, Faculty of Health, York University, Toronto, ON, M3J 1P3, Canada. mhoben@yorku.ca.
Andrea UbellAlzheimer Society of York Region, Aurora, ON, Canada.
Colleen J MaxwellSchool of Pharmacy, University of Waterloo, Waterloo, ON, Canada.
Saleema AllanaArthur Labatt Family School of Nursing, Faculty of Health Sciences, Western University, London, ON, Canada.
Malcolm B DoupeMax Rady Faculty of Health Sciences, College of Medicine, University of Manitoba, Winnipeg, MB, Canada.
Holly Symonds-BrownFaculty of Nursing, College of Health Sciences, University of Alberta, Edmonton, AB, Canada.
David B HoganCumming School of Medicine, University of Calgary, Calgary, AB, Canada.
Tamara DalySchool of Health Policy and Management, Faculty of Health, York University, Toronto, ON, M3J 1P3, Canada.
Kaitlyn C TateFaculty of Nursing, College of Health Sciences, University of Alberta, Edmonton, AB, Canada.
Adrian WaggDepartment of Medicine, Faculty of Medicine and Dentistry, College of Health Sciences, University of Alberta, Edmonton, AB, Canada.
Hung NguyenSchool of Health Policy and Management, Faculty of Health, York University, Toronto, ON, M3J 1P3, Canada.
Whitney BertaInstitute of Health Policy, Management and Evaluation, Dalla Lana School of Public Health, University of Toronto, Toronto, ON, Canada.
Jennifer BethellICES, Toronto, ON, Canada.
Sienna CasparFaculty of Health Sciences, University of Lethbridge, Lethbridge, AB, Canada.
Zahra GoodarziCumming School of Medicine, University of Calgary, Calgary, AB, Canada.
Kimberlyn McGrailCentre for Health Services and Policy Research, School of Population and Public Health, The University of British Columbia, Vancouver, BC, Canada.
Greta G CummingsFaculty of Nursing, College of Health Sciences, University of Alberta, Edmonton, AB, Canada.
Melanie RoweAdvisory Board of the Helen Carswell Chair in Dementia Care, Faculty of Health, York University, Toronto, ON, Canada.
Kelly KayAdvisory Board of the Helen Carswell Chair in Dementia Care, Faculty of Health, York University, Toronto, ON, Canada.
Patricia KostykAdvisory Board of the Helen Carswell Chair in Dementia Care, Faculty of Health, York University, Toronto, ON, Canada.
Kevin LazarukAdvisory Board of the Helen Carswell Chair in Dementia Care, Faculty of Health, York University, Toronto, ON, Canada.
Barbara MacLeanAdvisory Board of the Helen Carswell Chair in Dementia Care, Faculty of Health, York University, Toronto, ON, Canada.
Jim MannAdvisory Board of the Helen Carswell Chair in Dementia Care, Faculty of Health, York University, Toronto, ON, Canada.
Katrina PrescottAdvisory Board of the Helen Carswell Chair in Dementia Care, Faculty of Health, York University, Toronto, ON, Canada.

Funding

CIHR 195329
6 · The paper itself

Abstract

backgroundPersons with dementia, their family/friend caregivers, and health systems agree that the preferred place of dementia care is a person's home. Health systems have struggled to provide sufficient community-based dementia care supports, negatively affecting the health and well-being of persons with dementia and their caregivers. Therefore, dementia care and support of dementia caregivers are critical public health priorities. Adult day programs aim to simultaneously support the health and well-being of persons with dementia and their caregivers, but research focusing on these day program outcomes is lacking. The primary objective of this study was to compare various outcomes of day program attendees with dementia and their caregivers over time to outcomes of non-attendees with dementia in the community (with care needs similar to those of attendees) and their caregivers.

methodsIn each of four Canadian health regions (York Region, Ontario; Interior Health, British Columbia; Calgary, Alberta; Winnipeg, Manitoba), this study will recruit 250 day program attendees with dementia and their caregivers, and 500 community-based non-attendees with dementia and their caregivers. Applying criteria used by the health system to determine day program eligibility, we will identify non-attendees with care needs similar to those of attendees. We will combine participants' longitudinal health administrative data with repeated (baseline, 1-year, and 2-year follow-up) surveys to include variables not routinely collected by healthcare systems. Primary study outcomes are quality of life of the person with dementia and their caregiver. Secondary study outcomes include mental health (older adults, caregivers), cognitive and physical decline (older adults), time to admission to congregate care (older adults), and emergency room, hospital, and primary care use (older adults, caregivers). Using a day program survey, we will also assess day program characteristics. Using covariate-adjusted general estimating equations and time-to-event models, we will compare these outcomes between groups of day program exposure (no, low, medium, high). DISCUSSION: Persons living with dementia, their caregivers, and health systems urgently need solutions to support living at home with a good quality of life. This study will generate provide evidence on the potential of day programs to address these critical public healt needs.

trial registrationClinicalTrials.gov: NCT06496945.

Indexed as

CaregiversDay Care, MedicalDementiaAgedCanadaFemaleHumansMaleMulticenter Studies as TopicObservational Studies as TopicProgram EvaluationProspective StudiesQualitative ResearchQuality of LifeAdult day care centersAging in placeCaregiver burdenDementiaFamily or friend caregiversHome care servicesQuality of life

Identifiers

PMID40830776
PMCPMC12363022

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.