Evidence map›Paper›PMID 40828804›Full record

ArticlePloS one2025

Coping with stressful life disruptions due to long COVID: A qualitative study.

Marina B Wasilewski, Jaylyn Leighton, Logan Reis, Abirami Vijayakumar, Mahala English, Kris Sanchez, Sander L Hitzig, Michelle L A Nelson, Christine Sheppard, Lawrence Robinson and 8 more

Erratum issuedAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in PloS one, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed.

  1. Article
  2. Article
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4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

18 authors.

Marina B WasilewskiSinai Health Science of Care Institute; Institute of Health Policy, Management and Evaluation, Dalla Lana School of Public Health, Toronto, Ontario, Canada.ORCID https://orcid.org/0000-0003-1198-2292
Jaylyn LeightonSinai Health Science of Care Institute; Institute of Health Policy, Management and Evaluation, Dalla Lana School of Public Health, Toronto, Ontario, Canada.
Logan ReisSinai Health Science of Care Institute; Institute of Health Policy, Management and Evaluation, Dalla Lana School of Public Health, Toronto, Ontario, Canada.
Abirami VijayakumarSinai Health Science of Care Institute; Institute of Health Policy, Management and Evaluation, Dalla Lana School of Public Health, Toronto, Ontario, Canada.
Mahala EnglishSinai Health Science of Care Institute; Institute of Health Policy, Management and Evaluation, Dalla Lana School of Public Health, Toronto, Ontario, Canada.
Kris SanchezSinai Health Science of Care Institute; Institute of Health Policy, Management and Evaluation, Dalla Lana School of Public Health, Toronto, Ontario, Canada.ORCID https://orcid.org/0009-0000-1196-0064
Sander L HitzigSinai Health Science of Care Institute; Institute of Health Policy, Management and Evaluation, Dalla Lana School of Public Health, Toronto, Ontario, Canada.
Michelle L A NelsonSt. John's Rehab Research Program, Sunnybrook Research Institute, Sunnybrook Health Sciences Centre, Toronto, Ontario, Canada.
Christine SheppardFactor-Inwentash Faculty of Social Work, University of Toronto, Toronto, Ontario, Canada.
Lawrence RobinsonSinai Health Science of Care Institute; Institute of Health Policy, Management and Evaluation, Dalla Lana School of Public Health, Toronto, Ontario, Canada.
Rosalie SteinbergSinai Health Science of Care Institute; Institute of Health Policy, Management and Evaluation, Dalla Lana School of Public Health, Toronto, Ontario, Canada.ORCID https://orcid.org/0000-0002-5042-1378
Melody NguyenUHN Toronto Rehabilitation Institute, Toronto, Ontario, Canada.
Mark BayleySunnybrook Health Sciences Centre, Toronto, Ontario, Canada.
Nick DanemanUniversity Health Network, Toronto, Ontario, Canada.
Charissa LevyDivision of Physical Medicine and Rehabilitation, Department of Medicine, University of Toronto, Toronto, Ontario, Canada.
Susie GouldingSinai Health Science of Care Institute; Institute of Health Policy, Management and Evaluation, Dalla Lana School of Public Health, Toronto, Ontario, Canada.
Chester HoDivision of Physical Medicine & Rehabilitation, Department of Medicine, University of Toronto Toronto, Ontario, Canada.
Robert SimpsonUniversity Health Network, Toronto, Ontario, Canada.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundLong COVID impacts people's physical health and cognition which immensely affects their psychosocial well-being. A larger study was conducted that explored the psychosocial impacts of Long COVID on individuals and caregivers. This paper focuses on the impact of these stressful disruptions on one's health and psychosocial well-being, and how individuals cope with them.

methodsUtilizing a qualitative descriptive approach, we conducted interviews with 67 participants (52 people with Long COVID (mean age: 50.4) and 15 caregivers (mean age: 50.0)). People with Long COVID and caregivers were recruited from healthcare institutions through care team referrals, patient partners, and health organizations and via social media platforms. A thematic codebook developed through inter-coder agreement processes was used to analyze the data.

findingsThree key themes were identified: (1) Disruptions in people with Long COVID and caregivers' lives are characterized by a deviation from their perceived 'normalcy', (2) Disruptions lead to substantial stress, loss and grief (independence, agency, meaning, and purpose), and (3) People with Long COVID and caregivers cope with stressful disruptions by adapting their daily activities.

conclusionOur findings make the case for supportive rehabilitation strategies that address the psychosocial repercussions of Long COVID to help mitigate feelings of loss and grief, thereby increasing individuals' overall quality of life and well-being.

Indexed as

Adaptation, PsychologicalCaregiversCOVID-19Stress, PsychologicalAdultAgedFemaleHumansMaleMiddle AgedQualitative ResearchQuality of LifeSARS-CoV-2

Identifiers

PMID40828804
PMCPMC12364308

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.