SynthesisFrontiers in medicine2025
Identification and synthesis of end-of-life decision-making measures: a scoping review.
Synthesis in Frontiers in medicine, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
1 citing paper in PubMed.
- A scoping review of emotion and non-cognitive measures of decision-making ability in older adults by the ARMCADA study.Frontiers in public health · 2026Article
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Authors and funding
14 authors.
Funding
Abstract
Background: Cognitive impairment (CI) and related conditions are known to affect decision-making (DM), particularly in older adult populations. The intersection of CI and DM ability is crucial in end-of-life (EoL) care, where there is a confluence of heterogenous preferences and values often across different constituents (e.g., healthcare providers, family members, and proxies). Standardized questionnaires are necessary to characterize patients' EoL decisions, preferences, and readiness, but the extent of available measures is widely unknown. Objective: This scoping review aims to summarize the current state of the literature regarding EoL decision-making measures. This effort supports the development of the Advancing Reliable Measurement in Cognitive Aging and Decision-making Ability (ARMCADA) research initiative, which seeks to develop a decision-making battery for use in older adults. Methods: Following the Arksey and O'Malley framework, we conducted a scoping review for multiple domains of DM in studies published between January 2018 and November 2023. Any paper that assessed or characterized DM in participants 45 years and older was extracted for the DM domain, population characteristics, and DM measures. Results: An initial search identified 16,286 articles, of which 705 were classified as assessing DM. Of those, 34 articles included measures of the EoL domain, and 28 unique measures were identified. The MacArthur Competence Assessment Tool for Treatment (MacCAT-T), the Decisional Conflict Scale (DCS), and the Decision Regret Scale (DRS) were the only assessments used more than once in the scoping review. Many studies assessed clinical populations, including those with CI/dementia (12%), cancer (24%), and chronic conditions (16%). Findings show that measures used at the end of life emphasize decisional preferences, efficacy, and conflict. Conclusion: Overall, this review highlights the lack of DM ability measures that can assess older adults' capacity to make decisions regarding EoL-specific issues (e.g., life-sustaining treatment and pain management).
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