ArticleIJTLD open2025
Caregiver perspectives on TB-related stigma experienced by young children.
Article in IJTLD open, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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Abstract
backgroundTB-related stigma often stems from a fear of TB infection, power dynamics between social groups, and an association of TB with socially undesirable traits.
methodsThis study was conducted in South Africa within a prospective observational TB diagnostic cohort study, 'Umoya.' StopTB stigma questionnaires and activity-based interviews were administered to caregivers of children aged 0-9 years with presumptive pulmonary TB (PTB) 16 to 24 weeks after enrollment.
resultsIn total, 64 caregivers of 70 children (median age: 2y) with PTB completed the questionnaire. Most children (56%) had a known TB contact in the household. The questionnaire revealed that anticipated stigma was a common concern, with worries about people gossiping or speaking badly about their children (16.7%) or their child's feelings being hurt because of their TB diagnosis (16.7%). Internalized stigma of the child, as perceived by their caregiver, was the least affirmed stigma domain. Overall, caregiver perceptions of internalized stigma did not delay treatment. Twelve of these caregivers were also interviewed, which demonstrated themes of anticipated and internalized stigma, and comparisons to HIV stigma.
conclusionDeepening our understanding of stigma is critical to improving outcomes and experiences of young children and their families affected by TB.
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