ArticleNeuro-oncology practice2025
Advance care planning in primary malignant brain tumors: Knowledge, experiences, and preferences of patients and caregivers.
Article in Neuro-oncology practice, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Authors and funding
4 authors.
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Abstract
Background: Advance care planning (ACP) can help patients with primary malignant brain tumors to align treatments with their preferences. However, insights into patients' and caregivers' engagement with ACP remain scarce. This study elaborates on their knowledge, experiences, and preferences concerning ACP. Methods: This was a secondary analysis of data from the "National Survey on the Needs and Support of Brain Tumor Patients and Caregivers" in Japan. Responses from 128 patients and 106 caregivers were included. Descriptive statistics, logistic regression, and qualitative analyses of free-text responses were performed. Results: Patients were more willing than caregivers to participate in decisions regarding their treatment (96.8% vs. 82.5%, Conclusions: The mismatch between respondents' willingness to participate in ACP and their knowledge and experience reveals a need to increase ACP awareness. Differences in ACP preferences between patients and their caregivers may indicate the need for improved communication strategies by healthcare professionals. Further research is needed to understand these differences.
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