Evidence map›Paper›PMID 40810314›Full record

ArticleDisability and rehabilitation2026

Self-management in youth with spina bifida: predictors of health and quality of life outcomes.

Monique M Ridosh, William Adams, Fabiola Magaña, Kathleen J Sawin, Grayson N Holmbeck

Abstract read
In one paragraph

Article in Disability and rehabilitation, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Monique M RidoshMarcella Niehoff School of Nursing, Loyola University Chicago, Chicago, IL, USA.ORCID 0000-0002-2621-6710
William AdamsStritch School of Medicine, Loyola University Chicago, Chicago, IL, USA.
Fabiola MagañaMarcella Niehoff School of Nursing, Loyola University Chicago, Chicago, IL, USA.
Kathleen J SawinDepartment of Nursing Research and Evidence-Based Practice, Children's Wisconsin, Milwaukee, WI, USA.
Grayson N HolmbeckDepartment of Psychology, Loyola University Chicago, Chicago, IL, USA.

Funding

Self-Management in Adolescents and Young Adults with Spina BifidaR01NR016235 · NINR · LOYOLA UNIVERSITY OF CHICAGO · PI HOLMBECK, GRAYSON NEIL · 2016 to 2020
$1.8M
Psychosocial Adjustment in Adolescents with Spina BifidaR01HD048629 · NICHD · LOYOLA UNIVERSITY OF CHICAGO · PI HOLMBECK, GRAYSON NEIL · 2005 to 2009
$1.7M
Healthy Adolescent and Young Adult Self-Management in Spina BifidaK01NR018907 · NINR · LOYOLA UNIVERSITY CHICAGO · PI RIDOSH, MONIQUE · 2021 to 2023
$384k
NICHD NIH HHS R01 HD048629NINR NIH HHS K01 NR018907NINR NIH HHS R01 NR016235
6 · The paper itself

Abstract

purposeThis study examined factors associated with health status and quality of life (QOL) in youth with spina bifida.

methodsSelf-management, health complications, comorbidities, global health, and QOL were assessed. Linear and logistic regression models were used to measure associations between respondents' characteristics, self-management scores, and outcomes.

resultsParticipants (

conclusionThis study identified factors important to consider for better health and QOL in populations living with disabilities. As youth enter adult-oriented care, models of care must address declining mental health and provide gender-specific adaptive interventions to increase independent living self-management. As participants gain more independence in self-management, they appear to exhibit reduced risk of comorbid conditions and improvements in their individual health-related QOL and family QOL.

Indexed as

Health StatusPersons with DisabilitiesQuality of LifeSelf-ManagementSpinal DysraphismAdolescentAdultComorbidityFemaleHumansMaleMental HealthYoung Adultadolescentshealthindependencequality of lifeSelf-managementspina bifidayoung adults

Identifiers

PMID40810314
PMCPMC12409079

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.