Evidence map›Paper›PMID 40809310›Full record

ArticleResearch in autism spectrum disorders2023

Self-reported memory of autistic young adults and associated real-world outcomes.

Mary Godfrey, Goldie A McQuaid, Gregory L Wallace, Nancy Raitano Lee

Abstract read
In one paragraph

Article in Research in autism spectrum disorders, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Mary GodfreyKennedy Krieger Institute, Baltimore, MD.ORCID 0000-0002-1444-4679
Goldie A McQuaidGeorge Mason University, Fairfax, VA.ORCID 0000-0003-3614-616X
Gregory L WallaceThe George Washington University, Washington, D.C.ORCID 0000-0003-0329-5054
Nancy Raitano LeeDrexel University, Philadelphia, PA.ORCID 0000-0002-6663-0713

Funding

Multimodal Developmental Neurogenetics of Females with ASDR01MH100028 · NIMH · YALE UNIVERSITY · PI Allison Elizabeth Jack, LAUREN KENWORTHY · 2012 to 2026
$37.8M
A longitudinal study identifying psychological and service delivery targets to improve daily living skills and quality of life outcomes among transition-age autistic youthR01MH133838 · NIMH · CHILDREN'S HOSP OF PHILADELPHIA · PI LAUREN KENWORTHY, BENJAMIN YERYS · 2023 to 2026
$3.2M
Emotion processing, gender identity, and differential risk for anxiety and depression in autistic adultsK01MH129622 · NIMH · GEORGE MASON UNIVERSITY · PI Goldie Ann McQuaid · 2022 to 2026
$780k
Executive dysfunction as a treatment target for DS clinical trials: An evaluation of its real-world and neural correlates.R21HD106164 · NICHD · DREXEL UNIVERSITY · PI LEE, NANCY RAITANO, WALLACE, GREGORY L · 2021 to 2022
$541k
Evaluating a novel approach-avoidance model of repetitive behaviors in autistic adolescents: A multi-method studyR21MH129777 · NIMH · CHILDREN'S HOSP OF PHILADELPHIA · PI YERYS, BENJAMIN · 2022 to 2023
$468k
fNIRS as an outcome measure of the prefrontal hemodynamic response in Down syndromeR21HD100997 · NICHD · DREXEL UNIVERSITY · PI AYAZ, HASAN, EDGIN, JAMIE O. · 2019 to 2020
$436k
NICHD NIH HHS R21 HD100997NICHD NIH HHS R21 HD106164NIMH NIH HHS K01 MH129622NIMH NIH HHS R01 MH100028NIMH NIH HHS R01 MH133838NIMH NIH HHS R21 MH129777
6 · The paper itself

Abstract

Purpose: Although autistic adults have demonstrated weaker memory performance on lab-based measures in comparison to neurotypical peers, research on self-reported memory abilities in this group is scarce. Shedding light on memory abilities of autistic adults is important, as memory difficulties may impact daily living outcomes, an area of difficulty for autistic individuals. Thus, the current study aimed to characterize the self-reported memory complaints of a large sample of autistic adults in comparison to neurotypical adults. Methods: 396 young autistic adults and 396 young neurotypical adults between the ages of 18 and 39 years and with similar background characteristics participated. Autistic adults were recruited from the Simons Powering Autism Research (SPARK) participant registry, and data from neurotypical adults were obtained from a large-scale internet study. The responses to the Prospective and Retrospective Memory Questionnaire were compared by diagnostic group, and within the autistic group, relations between memory complaints and real-world outcomes (activities of daily living [ADLs] and postsecondary employment and educational activities) were examined. Results: The results indicated that young autistic adults reported greater memory problems than their neurotypical peers, regardless of memory type, and autistic adults reported a comparable pattern of complaints to their neurotypical peers (i.e., greater prospective memory complaints in comparison to retrospective memory complaints). Additionally, we found a negative association between memory complaints and outcomes (i.e., greater memory complaints were associated with less independence in ADLs and less favorable postsecondary outcomes). Conclusion: The significant association between subjective memory complaints and real-world outcomes suggests that memory abilities are an important contributor to daily living skills and post-secondary outcomes among autistic adults and could represent a target for future intervention development.

Indexed as

activities of daily livingAutismprospective memoryretrospective memory

Identifiers

PMID40809310
PMCPMC12345385

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.