Evidence map›Paper›PMID 40803726›Full record

ReviewBMJ open2025

Putting the patient at the centre: a call for research involvement of nurses, midwives and allied health professionals working in genomics.

Lorraine Cowley, Sasha Henriques, J Roberts, Laura Monje-Garcia, J Nolan, K Lubasch, R Theobald, R Greer, N Fennell, A Clarkson and 6 more

Abstract readReview
PubMed Full text at PMC Publisher
In one paragraph

Review in BMJ open, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

16 authors.

Lorraine CowleyNorthern Genetics Service, Newcastle Upon Tyne Hospitals NHS Foundation Trust, Newcastle Upon Tyne, UK.ORCID http://orcid.org/0000-0001-7789-5197
Sasha HenriquesFaculty of Education, Cambridge University, Cambridge, UK sasha.henriques@wellcomeconnectingscience.org.ORCID http://orcid.org/0009-0008-0422-6468
J RobertsEast Suffolk and North Essex NHS foundation Trust, Colchester, UK.
Laura Monje-GarciaSt Mark's Centre for Familial Intestinal Cancer, London North West University Healthcare NHS Trust, Harrow, London, UK.
J NolanThe Royal Marsden NHS Foundation Trust, The Institute of Cancer Research, London, UK.
K LubaschOxford University Hospitals NHS Foundation Trust, Oxford, UK.
R TheobaldNewcastle Upon Tyne Hospitals NHS Foundation Trust, Newcastle Upon Tyne, UK.
R GreerNewcastle Upon Tyne Hospitals NHS Foundation Trust, Newcastle Upon Tyne, UK.
N FennellUniversity of Cambridge School of Clinical Medicine, Cambridge, UK.
A ClarksonNewcastle Upon Tyne Hospitals NHS Foundation Trust, Newcastle Upon Tyne, UK.
M ClaphamNorth Cumbria Integrated Care NHS Foundation Trust, Penrith, Cumbria, UK.
S ChiltonNewcastle Upon Tyne Hospitals NHS Foundation Trust, Newcastle Upon Tyne, UK.
R AllonNewcastle Upon Tyne Hospitals NHS Foundation Trust, Newcastle Upon Tyne, UK.
Cheryl StopfordLeeds Teaching Hospitals NHS Trust, Leeds, UK.
Heather Hanson PierceDepartment of Paediatrics, University of Cambridge, Cambridge, UK.
D HollidayLeeds Teaching Hospitals NHS Trust, Leeds, UK.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionWe report the collaborative views of a group of nurses, midwives and allied health professionals (NMAHPs) in the UK who have a genomics research remit or interest. Our group includes genetic counsellors under this diverse category of healthcare workers.This group came together as part of the National Institute for Health and Social Care Research (NIHR) Genomics Research National Specialty Group. After responding to a survey to elicit the views of NMAHPs working in genomics, some of the original 45 respondents, along with others who learnt of the project by word of mouth, have worked together to produce this article.

objectiveThe paper aims to set out in clear terms the value of NMAHPs to research that supports the patient-centred implementation of genomics in the National Health Service (NHS). KEY ARGUMENT: We discuss four potential areas where NMAHPs, in particular, can contribute to the research. These are patient perspectives and epistemic justice, psychosocial impacts, the familial nature of genomics and equity. We argue that this group (NMAHPs) represents a potentially underused resource for the NHS as it seeks to ensure that advances in genomics are translated into patient benefit.

conclusionsWe propose that NMAHPs, with our research expertise, are well placed to shape and deliver a research agenda that explores models of patient-centred care in the genomics era. We call for increased funding for NMAHP research roles and funding opportunities to deliver this fundamental work.

Indexed as

Allied Health PersonnelGenomicsMidwiferyNursesHumansPatient-Centered CareState MedicineUnited KingdomGENETICSHealthMedicineNursing researchPatientsQUALITATIVE RESEARCH

Identifiers

PMID40803726
PMCPMC12352142

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.