Evidence map›Paper›PMID 40794269›Full record

ArticleJournal of bioethical inquiry2025

Patient and Public Involvement with Forced Migrants: An Empirical Exploration of Ethical Issues.

Elin Inge, Nimo Elmi, Yasmin Omar, Georgina Warner, Ulrik Kihlbom

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of bioethical inquiry, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Elin IngeCHAP, Department of Public Health and Caring Sciences, Uppsala University, Box 564, 751 22, Uppsala, Sweden. elin.inge@uu.se.ORCID 0000-0002-5467-5850
Nimo ElmiCHAP, Department of Public Health and Caring Sciences, Uppsala University, Box 564, 751 22, Uppsala, Sweden.
Yasmin OmarCHAP, Department of Public Health and Caring Sciences, Uppsala University, Box 564, 751 22, Uppsala, Sweden.
Georgina WarnerCHAP, Department of Public Health and Caring Sciences, Uppsala University, Box 564, 751 22, Uppsala, Sweden.
Ulrik KihlbomDepartment of Learning, Informatics, Management and Ethics (LIME), Karolinska Institutet, Inst. LIME, Att: Ulrik Kihlbom, Karolinska Institutet, 171 77, Stockholm, Sweden.

Funding

Kavlifondet A-321629
6 · The paper itself

Abstract

Patient and public involvement (PPI) with forced migrants can have positive impacts on health research, but empirical knowledge on the ethics of involving forced migrants is scarce. Unsolved ethical issues risk hindering meaningful involvement and jeopardize the research process, as well as harming the public contributors and causing moral distress. In this article, we aimed to identify ethical issues in PPI with forced migrants and present case examples, based on qualitative data and using thematic analysis, as well as analyse the issues using the ethical principles by Beauchamp and Childress as well as PPI-centred values. The ethical issues identified were "Treating forced migrant public contributors as a vulnerable group can inhibit autonomy"; "Non-inclusive communication strategies can contribute to injustice"; "Regulations around payment risk excluding the most vulnerable from involvement"; "Public contributors risk being excluded from partaking in decision-making," and "If trust is not established, public contributors do not feel safe sharing honest input." Further, we discussed the ethical issues using relational ethics, with a focus on how to conduct PPI with forced migrants in an ethical way.

Indexed as

Community ParticipationPatient ParticipationTransients and MigrantsDecision MakingFemaleHumansMalePersonal AutonomyQualitative ResearchTrustVulnerable PopulationsEmpirical ethicsForced migrantsPatient and public involvementQualitativeRelational ethicsThematic analysis

Identifiers

PMID40794269
PMCPMC12783280

What OpenQuestion holds

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.