Evidence map›Paper›PMID 40792540›Full record

ArticleAutism : the international journal of research and practice2025

Consensus recommendations for usability and acceptability of mobile health autism screening tools.

Gabriella Tangkilisan, Luis Rivas Vazquez, Plyce Fuchu, Benjamin Sanders, Jill K Dolata, Steven Bedrick, Eric Fombonne, Sarabeth Broder-Fingert, Katharine E Zuckerman

Abstract readConsensus Statement
In one paragraph

Article in Autism : the international journal of research and practice, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Consensus recommendations for usability and acceptability of mobile health autism screening tools.Autism : the international journal of research and practice · 2025
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Gabriella TangkilisanOregon Health & Science University, USA.ORCID 0000-0003-3103-138X
Luis Rivas VazquezOregon Health & Science University, USA.
Plyce FuchuUniversity of Massachusetts Chan Medical School, USA.
Benjamin SandersOregon Health & Science University, USA.ORCID 0000-0001-8559-8790
Jill K DolataOregon Health & Science University, USA.
Steven BedrickOregon Health & Science University, USA.
Eric FombonneOregon Health & Science University, USA.ORCID 0000-0002-8605-3538
Sarabeth Broder-FingertUniversity of Massachusetts Chan Medical School, USA.
Katharine E ZuckermanOregon Health & Science University, USA.ORCID 0000-0003-0979-3740

Funding

TRAINING PROGRAM IN HEALTH INFORMATICST15LM007088 · NLM · OREGON HEALTH & SCIENCE UNIVERSITY · PI WILLIAM R HERSH, Vishnu Mohan · 1992 to 2026
$23.4M
EXITO: Enhancing Cross-disciplinary Infrastructure and Training at OregonUL1GM118964 · NIGMS · PORTLAND STATE UNIVERSITY · PI KELLER, THOMAS E · 2015 to 2023
$18.0M
EXITO: Enhancing Cross-disciplinary Infrastructure and Training at OregonRL5GM118963 · NIGMS · PORTLAND STATE UNIVERSITY · PI KELLER, THOMAS E · 2015 to 2023
$11.9M
EXITO: Enhancing Cross-disciplinary Infrastructure and Training at OregonTL4GM118965 · NIGMS · PORTLAND STATE UNIVERSITY · PI KELLER, THOMAS E · 2015 to 2022
$10.1M
Assessing Usability of mHealth Autism Screeners in the Medically UnderservedR21MH120349 · NIMH · OREGON HEALTH & SCIENCE UNIVERSITY · PI ZUCKERMAN, KATHARINE ELIZABETH · 2019 to 2020
$449k
NIGMS NIH HHS RL5 GM118963NIGMS NIH HHS TL4 GM118965NIGMS NIH HHS UL1 GM118964NIMH NIH HHS R21 MH120349NLM NIH HHS T15 LM007088
6 · The paper itself

Abstract

Mobile health (mHealth; online phone or tablet-based) screening tools for autism are being increasingly used by parents, health care, and educational providers. However, it is unclear whether mHealth autism screening will improve the inequalities in autism or further help individuals already advantaged in autism care. To try to improve equity in mHealth autism screening, we conducted a modified Delphi consensus panel process with 14 panelists who were medical providers, parents, tool developers, and educational providers. Panelists participated in three asynchronous online voting rounds followed by online discussions. Panelists were provided a preliminary list of 28 recommendations for autism-screening tools that were compiled from previous qualitative interviews in the larger project. In each round, panelists were asked to vote for up to 10 recommendations from the preliminary list and discuss the voting results. After the third round of asynchronous voting, a final round of discussion with all the panelists was held live through Zoom to discuss the final asynchronous voting results. All voting and discussion took place on an online app called Slack. Voting and discussion yielded 19 recommendations in five conceptual categories: transparency, equity, access, product design and user experience, and development process. Tools adhering to these recommendations may increase equitable service use after screening.Lay abstractFamilies may use information online to learn more about autism. Families, health care, and educational providers may use online tools like checklists or web apps to screen for autism (measure whether a young child has autism symptoms or behaviors). However, we do not know whether the online autism-screening tools can be easily used by families and providers. It is possible that families who are culturally diverse, have lower education, or have lower income have trouble using online autism-screening tools. We conducted an online consensus panel with medical/educational providers, parents, and tool developers, asking them to vote and have discussions on suggestions for online screening tools for autism. The voting and discussions resulted in 19 suggestions for changes to make the tools easier to use. The top recommendations included directly linking to sources of information about autism, reading level that is less than or equal to fifth grade, and focusing on the diverse behavior/needs/strengths associated with autism.

Indexed as

Autistic DisorderMass ScreeningMobile ApplicationsTelemedicineDelphi TechniqueHumansParentsautism screeningautism spectrum disorderDelphi consensusdevelopmental screeningdisparitiesmobile healthpractice guidelines

Identifiers

PMID40792540
PMCPMC12411648

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.