ArticleHealth expectations : an international journal of public participation in health care and health policy2025
Co-Design or Faux-Design? Reflections on Co-Designing Safe Spaces for People in Emotional Distress or Suicidal Crisis in Australia.
Article in Health expectations : an international journal of public participation in health care and health policy, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.
What it found
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Who cites it
4 citing papers in PubMed.
- The role of lived and living experience in evidence-based decision-making in suicide prevention.Health promotion international · 2026Article
- Co-designing suicide prevention research with mothers of suicidal adolescents - applying McKercher's Model of Care.Research involvement and engagement · 2026Article
- Developing guidelines for supporting employees disclosing suicidal distress while working: a Delphi expert consensus study.BMC public health · 2026Article
- Building meaningful relationships through co-design: reflections from a participatory multi-year research partnership to create MedManageSCI.Frontiers in health services · 2026Article
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Authors and funding
9 authors.
Funding
Abstract
backgroundThe past decade has seen an increase in non-clinical 'safe spaces' for those experiencing suicidal crisis or distress. Integrating service user perspectives through co-design is increasingly recognised as essential for the design of these services to meet user needs. Operationalising genuine co-design practices involving diverse stakeholders in local contexts remains underdeveloped, and research remains limited.
objectiveDrawing on co-design participants' experiences, this study evaluates how co-design processes influenced the design and implementation of safe space models in Australia.
designA mixed-methods design was used to analyse survey, interview and documentary data for six safe space co-design projects. Thematic synthesis and triangulation were applied to develop overarching themes. SETTING AND
participantsKey partners, steering committee members and lived experience representatives involved in the co-design and implementation of the six sites participated in surveys and interviews.
resultsPower imbalances between health services staff and lived experience representatives were key barriers to genuine engagement, alongside tokenistic co-design, or 'faux-design'. Despite these challenges, all participants reflected positively on their involvement.
conclusionsEffective co-design requires trust, transparency, power sharing, sufficient resourcing and sustained lived experience engagement throughout the project life cycle. Health service providers must assess their capacity for authentic engagement before attempting co-design. Future co-design initiatives should focus on ensuring that lived experience input is not lost during implementation. Future research should explore how to support and sustain this engagement throughout all project phases. PATIENT OR PUBLIC CONTRIBUTION: People with lived experience of emotional distress and/or suicidal crisis, including academic researchers, health, community service and peer workers, carers, and advocates were involved in this study. All authors identify as people with lived experience, from both academic and non-research backgrounds.
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