Evidence map›Paper›PMID 40785588›Full record

ArticleNursing in critical care2025

'Being a Good Parent' for Seriously Ill Children in Brazil: A Qualitative Semantic Analysis.

Fernanda Machado Silva-Rodrigues, Pamela S Hinds, Maiara Rodrigues Dos Santos, Lucas Thiago Pereira da Silva, Regina Szylit

Abstract read
In one paragraph

Article in Nursing in critical care, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Fernanda Machado Silva-RodriguesSchool of Nursing, University of São Paulo (USP), São Paulo, Brazil.ORCID https://orcid.org/0000-0002-8412-2333
Pamela S HindsDepartment of Nursing Science, Professional Practice and Quality, Children's National Health System, Professor of Pediatrics, The George Washington University, Washington, DC, USA.ORCID https://orcid.org/0000-0001-6491-6649
Maiara Rodrigues Dos SantosSchool of Nursing, University of São Paulo (USP), São Paulo, Brazil.ORCID https://orcid.org/0000-0002-5625-5999
Lucas Thiago Pereira da SilvaSchool of Nursing, University of São Paulo (USP), São Paulo, Brazil.ORCID https://orcid.org/0000-0001-5496-3652
Regina SzylitSchool of Nursing, University of São Paulo (USP), São Paulo, Brazil.ORCID https://orcid.org/0000-0002-9250-0250

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundMost studies on 'being a good parent' focus on North American populations, leaving a gap in understanding parents' cultural beliefs and definitions in other regions. Cultural values, societal norms and personal experiences shape these beliefs, influencing their caregiving roles and actions.

aimsThis qualitative study explored Brazilian parents' beliefs about being 'good parents' to seriously ill children in the paediatric intensive care unit (PICU) and examined parents' descriptions of healthcare professionals' behaviours that support them in this role. STUDY

designThe study used a convenience sample of 15 parents of 15 children diagnosed with life-threatening clinical conditions. Semi-structured interviews were conducted and analysed using inductive semantic content analysis.

resultsThe analysis revealed four primary themes: 'Being present for my child' (n = 12, 80%), where parents highlighted the need for continuous physical and emotional availability; 'Providing protection' (n = 5, 33%), emphasising their role in safeguarding their child's well-being; 'Maintaining emotional balance and patience' (n = 2, 13%), which reflected the emotional regulation needed to navigate the PICU experience; and 'Effective communication with healthcare professionals' (n = 2, 13%), underscoring the importance of clear information and collaborative decision-making. These themes reflect core parental values, including unwavering support, ensuring their child's safety and maintaining a sense of control in the uncertain environment of the PICU.

conclusionsThe study reveals Brazilian parents' beliefs about being a 'good parent' in the PICU, emphasising the importance of parental presence, specific behaviours and family unity in ensuring their child's well-being. It also highlights the role of effective communication and information from healthcare professionals, which allows parents to make informed decisions and engage actively in their child's care. RELEVANCE TO CLINICAL PRACTICE: Understanding Brazilian parents' cultural beliefs and expectations underscores the need for a comprehensive approach to caregiving in the PICU, where critical care nurses play a key role. By providing emotional support, clear communication and guidance, nurses can help parents navigate their caregiving role, reducing stress and enhancing parental involvement. Tailoring communication and support strategies to these needs can strengthen family-centred care and improve the overall experience for parents and their seriously ill children.

Indexed as

Critical IllnessParentsAdultBrazilChildChild, PreschoolFemaleHumansInfantIntensive Care Units, PediatricInterviews as TopicMaleProfessional-Family RelationsQualitative Researchchildcarecritical careparentingpatient care planningqualitative study

Identifiers

PMID40785588
PMCPMC12337078

What OpenQuestion holds

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.