ArticleCancer medicine2025
Engaging Under-Represented Adolescents and Young Adults in Cancer Research: A Qualitative Exploration of Lived Experiences and Engagement Strategies.
Article in Cancer medicine, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
4 citing papers in PubMed.
- Mapping Multilevel Barriers and Facilitators to Inclusive Cancer Care for Sexual and Gender Minority Populations: A Scoping Review.Cancer medicine · 2026Article
- "I felt as though my life had come to an end": lived experiences of adolescents and young adults with cancer in Nepal.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- Top 10 research priorities for adolescent and young adult cancer in Canada: a James Lind Alliance priority setting partnership.BMJ open · 2026Article
- Engaging Under-Represented Adolescents and Young Adults in Cancer Research: A Qualitative Exploration of Lived Experiences and Engagement Strategies.Cancer medicine · 2025Article
Corrections and comments
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Authors and funding
12 authors.
Funding
Abstract
backgroundAdolescents and young adults (AYAs; 15-39 years) diagnosed with cancer face unique challenges during and after treatment, which have implications for improving cancer care. However, AYA cancer research is limited by the under-representation of those who identify as Indigenous, racialized, 2S/LGBTQIA+, and those living with disabilities. The aim of this project was to explore lived experiences and identify barriers and enablers to engagement, to inform strategies that facilitate the inclusion of under-represented AYAs in cancer research.
methodsUsing a community-based partnership research (CBPR) approach, under-represented AYAs diagnosed with cancer, along with non-patient advocates who serve this population, were recruited through social media, snowball, and convenience sampling. Semi-structured interviews were conducted virtually through Zoom and analyzed using reflexive thematic analysis. Analyses were informed by collaborations with a patient partner and member-checking feedback.
resultsInterviews were conducted with AYAs (n = 17) and non-patient advocates (n = 2). Analyses generated three themes: (1) representation leads to empowerment, (2) person-centered approaches are a prerequisite to building connections, and (3) structural contexts influence the impact of research. DISCUSSION: Our findings inform inclusive strategies for future studies to ensure the voices of all AYAs with cancer are represented in research. This study also highlights the importance of CBPR and the positive impact of knowledge derived from lived experiences in shaping research processes and outcomes.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.