Evidence map›Paper›PMID 40781345›Full record

ArticleResearch involvement and engagement2025

Advancing equity in cancer research through principled partnership: stakeholder engagement practices in The Social Interventions for Support during Treatment for Endometrial cancer and Recurrence (SISTER) Study.

Julianna G Alson, Kemi M Doll, Bridgette H Hempstead, Lisa Barr, Danielle C Lavallee, Liz Sage, Adrienne Moore, Scott D Ramsey, Erika M Wolff, Bryan A Comstock and 6 more

Abstract readLetter
PubMed Full text at PMC Publisher
In one paragraph

Article in Research involvement and engagement, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

16 authors.

Julianna G AlsonDepartment of Obstetrics & Gynecology, University of Washington, Seattle, WA, USA. jalson@uw.edu.
Kemi M DollDepartment of Obstetrics & Gynecology, University of Washington, Seattle, WA, USA.
Bridgette H HempsteadCierra SISTERS, Inc., Cierra SISTER, Inc., Seattle, WA, USA.
Lisa BarrIndependent Consultant, Seattle, WA, USA.
Danielle C LavalleeMichael Smith Health Research, Vancouver, BC, Canada.
Liz SageDepartment of Obstetrics & Gynecology, University of Washington, Seattle, WA, USA.
Adrienne MooreDepartment of Obstetrics & Gynecology, University of Washington, Seattle, WA, USA.
Scott D RamseyFred Hutchinson Cancer Research Center, Seattle, WA, USA.
Erika M WolffDepartment of Urology, University of Washington, Seattle, WA, USA.
Bryan A ComstockDepartment of Biostatistics, University of Washington School of Public Health, Seattle, WA, USA.
Sarah E MonsellDepartment of Biostatistics, University of Washington School of Public Health, Seattle, WA, USA.
Ronit KatzDepartment of Obstetrics & Gynecology, University of Washington, Seattle, WA, USA.
Charlotte R GambleMedStar Health, Washington, D.C, USA.
Anna L BeavisKelly Gynecologic Oncology Service, Department of Gynecology and Obstetrics, Johns Hopkins School of Medicine, Baltimore, MD, USA.
Monika WatatDepartment of Population, Family and Reproductive Health, Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, USA.
SISTER Study Consortium

Funding

Patient Centered Outcomes Research In AD-2020C1-19210
6 · The paper itself

Abstract

backgroundIn cancer, lack of social support is associated with reduced survival. Peer support interventions have reduced social isolation among Black women with cancer but have yet to be adapted for Black people diagnosed with endometrial cancer - a growing, high-need demographic that has been historically excluded from community-engaged research. Our research team at the University of Washington addressed this gap by working within an established community partnership to develop a pragmatic randomized controlled trial to adapt and test social support interventions among Black women with EC - the Social Interventions for Support during Treatment of Endometrial Cancer and Recurrence (SISTER) Study. The goal of this commentary is to describe the stakeholder engagement practices used in the conceptualization and start-up of the SISTER Study. MAIN TEXT: The research team, including Black endometrial cancer survivors, developed a grant proposal, grounded in engagement values derived from the Patient-Centered Outcomes Research Institute

conclusionThe SISTER Study is an example of establishing principled methods of stakeholder engagement within an area of study and population that has been underrepresented in stakeholder-engaged research. The engagement practices within the SISTER Study can inform community-academic partnership practices in health equity research.

Indexed as

Endometrial cancerHealth equityPatient participationPatient-reported outcome measuresPragmatic clinical trialRandomized control trialResearch designSocial supportStakeholder participation

Identifiers

PMID40781345
PMCPMC12333272

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.