ArticleHaemophilia : the official journal of the World Federation of Hemophilia2025
Identifying Professional Responsibilities and Designing the Optimal Curriculum for Haemophilia Nurses in Spain: A Round Table Discussion.
Article in Haemophilia : the official journal of the World Federation of Hemophilia, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
1 citing paper in PubMed.
- Identifying Professional Responsibilities and Designing the Optimal Curriculum for Haemophilia Nurses in Spain: A Round Table Discussion.Haemophilia : the official journal of the World Federation of Hemophilia · 2025Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
13 authors.
Funding
Abstract
introductionThere is a lack of consensus on professional competencies or educational requirements needed for registered nurses working with haemophilia patients (namely, haemophilia nurses) in thrombosis and haemostasis units in Spain. Their role is not officially recognised in many healthcare systems (HCS), including Spain.
aimTo identify and define the optimal curriculum and professional responsibilities of haemophilia nurses in Spain.
methodsA total of 205 items were developed through literature review, and the input was presented and rated using a 10-point Likert scale to reach posterior consensus. Items were grouped into three blocks: optimal curriculum, responsibilities in therapeutic management and follow-up, and roles in patient and family education. Consensus was defined as a mean score between 6.6 and 10. A virtual round table with final statements was held on 19 March 2024 with the participation of 13 haemophilia nurses.
resultsAgreement was reached on all items. A three-level framework (basic, advanced, expert) was proposed as a tool for knowledge of pathophysiology, laboratory procedures and therapeutic strategies. Nurses also pointed to an active role in treatment management, clinical assessment and education. Other ideal responsibilities included participation in research, education of colleagues, patients and families, and advocacy within the HCS.
conclusionThis consensus-based proposal aimed to provide a structured, standardised framework for the education, scope, and recognition of congenital coagulopathies nurses in Spain. This framework of competencies could be the stepping stone to formal training programmes, accreditation systems, and the advancement of professional development in specialised nursing care for rare bleeding disorders.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.