Evidence map›Paper›PMID 40777195›Full record

ArticleHealth care transitions2025

Peer-support needs and experiences of young adults with chronic conditions: A mixed methods study.

Katherine Melton, Brynn Telenko, Peyton Miles, Sneha Dave, Sydney Reed, Rosa Kelekian, Caroline Walsh, Shannon O'Donnell, Kathleen E Walsh

Abstract read
In one paragraph

Article in Health care transitions, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Katherine MeltonBoston Children's Hospital, USA.
Brynn TelenkoBoston Children's Hospital, USA.
Peyton MilesGeneration Patient, USA.
Sneha DaveGeneration Patient, USA.
Sydney ReedGeneration Patient, USA.
Rosa KelekianGeneration Patient, USA.
Caroline WalshGeneration Patient, USA.
Shannon O'DonnellBoston Children's Hospital, USA.
Kathleen E WalshBoston Children's Hospital, USA.

Funding

AHRQ HHS T32 HS000063
6 · The paper itself

Abstract

Introduction: Little is known about how young adults with chronic conditions view peer support and virtual peer-support programming. The purpose of this study is to (1) describe the psychosocial and peer support needs of young adults with different chronic conditions and (2) evaluate the acceptability of a virtual community led peer-support program. Methods: We developed and pilot-tested a 64-item online survey that included items about demographics, diagnosis and disease severity, peer support use and beliefs, program use and satisfaction, the UCLA 3-item loneliness scale, and free text responses. 136 young adults (18-35) with chronic conditions recruited from an email listserv participated. Two researchers coded free text responses and integrated quantitative and qualitative data using a convergent parallel mixed methods approach. Results: Participants expressed social isolation, difficulty connecting with healthy peers, and a desire for greater availability of peer support programs. Of the participants, 72 % (n = 96) reported a UCLA loneliness score ≥ 6, indicating loneliness. The majority (91 %, n = 119) expressed that it was important to them to know other chronically ill young adults. Only 11 % (n = 15) reported that their hospital provided peer support programming. Most (94 %;(n = 32) peer support participants were somewhat or completely satisfied with the program. Conclusions: Across different chronic conditions, peer support was seen as an unmet need and greater availability of virtual peer support programs may help support the psychosocial wellbeing of young adults with chronic conditions.

Indexed as

Mixed methodsPeer supportProgram evaluationYoung adult

Identifiers

PMID40777195
PMCPMC12329556

What OpenQuestion holds

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LicenceCC BY-NC-ND
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.