ArticleScandinavian journal of caring sciences2025
Navigating Everyday as Partners to Persons With Early Dementia: A Scoping Review.
Article in Scandinavian journal of caring sciences, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
2 citing papers in PubMed.
- One of the Many Things That I've Learned on This Journey…: A Co-operative, Narrative Inquiry With Two Care Partners of Spouses With Young Onset Dementia.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Navigating Everyday as Partners to Persons With Early Dementia: A Scoping Review.Scandinavian journal of caring sciences · 2025Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundCaregivers often lack access to comprehensive information on young-onset dementia (YOD), leaving them unprepared for their caregiving roles. Especially, spousal caregivers of people with (YOD) face challenges, balancing caregiving with work and personal responsibilities in everyday life. However, their specific needs remain underexplored.
objectiveThis scoping review aimed to identify and map the lived experiences and unmet needs of spousal caregivers of persons with YOD.
methodsA systematic literature search was conducted across several databases (Embase, Scopus, Academic Search Premier, APA PsycInfo, CINAHL Ultimate, and PubMed via EBSCOhost), including MEDLINE to identify studies on spousal caregivers of people with YOD. Articles were screened and selected based on inclusion criteria, and key data were extracted and categorised into themes that captured the lived experiences and unmet needs of this caregiver population.
findingsThe review identified five overarching themes related to the needs of spousal caregivers of people with YOD: psychoeducational, social support, practical support, emotional and psychological support, and navigational support needs. Caregivers often lack access to comprehensive information on YOD, leaving them unprepared for their caregiving roles. Social isolation, financial burdens, and role conflicts were common experiences. Emotional distress, identity loss, and lack of recognition for caregiving efforts contributed to psychological strain. Moreover, caregivers encountered significant challenges in accessing and coordinating healthcare services, often having to advocate for appropriate support. The need for tailored services, respite care, financial and legal guidance, and professional counselling was strongly emphasised.
conclusionThis scoping review identified a wide range of unmet needs among spousal caregivers of persons with YOD, underscoring the need for psychoeducational, social, practical, emotional, and navigational support. The findings revealed gaps in current support systems across personal, social, and systemic levels, emphasising the complex and disruptive nature of the caregiving experience. Future interventions should prioritise accessible, comprehensive, and tailored support services to effectively address these unique caregiving challenges.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.