ArticleNPJ digital medicine2025
A systematic review of responsible stewardship of research and health data from Indigenous communities.
Article in NPJ digital medicine, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
4 citing papers in PubMed.
- Reclaiming Data, Restoring Health: The Indigenous Biomedical Data Science Renaissance.Annual review of biomedical data science · 2026Review
- Development of a Blockchain-Based Platform to Enable Indigenous Data Sovereignty and Shared Research Participation With Indigenous Communities: Technology Prototyping and Community Engagement Study.Journal of medical Internet research · 2026Article
- Article
- Health technology design considerations specific to Indigenous Data Sovereignty and implementation science.Frontiers in health services · 2026Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors.
Funding
Abstract
There is growing recognition of the moral and legal authority of Indigenous Peoples to regulate research and other matters that involve their communities under the principle of Indigenous Data Sovereignty (IDS). This systematic review has two aims: (1) detail IDS considerations and practices in health research in the United States and other global contexts; and (2) identify frameworks that operationalize IDS practices for responsible conduct of research and use of data-driven technologies. Our review returned 41 relevant articles detailing specific considerations for the collection, access, and use of Indigenous data, and sub-themes such as cultural and regional considerations. More than half of the articles articulated a theoretical framework or detailed set of guidelines for using Indigenous data, with two especially focused on digital data considerations. Results indicate that intentional engagement with Indigenous researchers and communities will minimize harm and maximize benefits for all participating in research and technology development.
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.