Evidence map›Paper›PMID 40761030›Full record

ArticleChild: care, health and development2025

Adolescent, Parent and Clinician Perspectives on Time Alone in Chronic Illness Visits at a Single Children's Hospital.

Eleanor Lustig, Alfonso L Floyd, Elizabeth A Friedrich, Morgan Snyder, Victoria A Miller

Abstract read
In one paragraph

Article in Child: care, health and development, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

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1citing papers in PubMed
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1 · What the graph read from it

What it found

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2 · The registry

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3 · Its place in the literature

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1 citing paper in PubMed.

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4 · The record

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5 · Who and what money

Authors and funding

5 authors.

Eleanor LustigPerelman School of Medicine, University of Pennsylvania, Philadelphia, Pennsylvania, USA.ORCID https://orcid.org/0009-0001-2736-5187
Alfonso L FloydDivision of Adolescent Medicine, Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, USA.
Elizabeth A FriedrichDivision of Adolescent Medicine, Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, USA.
Morgan SnyderDivision of Adolescent Medicine, Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, USA.
Victoria A MillerDivision of Adolescent Medicine, Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, USA.

Funding

Adolescents’ involvement in decision making during specialty care visits for pediatric chronic illness: Development and evaluation of a new measure and implications for self-managementR01NR020005 · NINR · CHILDREN'S HOSP OF PHILADELPHIA · PI MILLER, VICTORIA ALLISON · 2021 to 2025
$2.6M
NINR NIH HHS 1R01NR020005NINR NIH HHS R01 NR020005Perelman School of Medicine, University of Pennsylvania
6 · The paper itself

Abstract

backgroundTime alone between adolescents with chronic illnesses and their clinicians may contribute to patient-centred care and transition readiness within this population. Shifts in the adolescent-parent-clinician relationship underpin this contribution; as such, this qualitative study explored adolescent, parent and clinician perspectives on time alone in routine visits for paediatric chronic illness.

methodsSemi-structured interviews with English-speaking adolescents (ages 12-17, n = 65) and their parents (n = 63) were conducted after follow-up visits for inflammatory bowel disease (IBD), juvenile idiopathic arthritis (JIA), sickle cell disease (SCD) or type 1 diabetes (TID) at specialty clinics affiliated with the Children's Hospital of Philadelphia. Clinicians (n = 16) at the same clinics were also interviewed for this cross-sectional qualitative study. Interviews were transcribed, and thematic analysis was performed using an inductive approach.

resultsQualitative analysis yielded six themes: (1) Clinician, parent and adolescent factors influence provision of time alone; (2) some adolescents communicate more openly with their clinician during time alone; (3) some adolescents do not share new information during time alone; (4) time alone facilitates the development of the clinician-adolescent relationship and helps prepare the adolescent for the transition to adult care; (5) clinicians continuously re-negotiate the parent-adolescent-clinician relationship to meet adolescents' needs; and (6) time alone can raise challenges for clinicians.

conclusionTime alone can affect information sharing and relationship building between adolescents with chronic illnesses and their clinicians. By fostering open communication and trust in the adolescent-clinician relationship, time alone may help prepare adolescents with chronic illnesses for the transition to adult care.

Indexed as

ParentsAdolescentAnemia, Sickle CellArthritis, JuvenileAttitude of Health PersonnelChildChronic DiseaseCommunicationCross-Sectional StudiesDiabetes Mellitus, Type 1FemaleHospitals, PediatricHumansMalePatient-Centered CarePhysician-Patient Relationsinflammatory bowel diseasejuvenile idiopathic arthritissickle cell diseasetransition to adult caretype 1 diabetes

Identifiers

PMID40761030
PMCPMC12379060

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