Evidence map›Paper›PMID 40759958›Full record

ArticleHealth research policy and systems2025

Shaping the future of primary care in Canada: trainee insights on patient and public engagement in health system transformation research.

Ashley Chisholm, Meghan Gilfoyle, Maggie MacNeil, Carolyn Melro

Abstract read
In one paragraph

Article in Health research policy and systems, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Beyond the horizon: new directions in research coproduction.Health research policy and systems · 2026
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Ashley ChisholmCanadian Medical Association, Ottawa, ON, Canada. Ashley.Chisholm@cma.ca.
Meghan GilfoyleWomen's College Hospital Institute for Health System Solutions and Virtual Care, Toronto, ON, Canada.
Maggie MacNeilSchool of Nursing, McMaster University, Hamilton, Canada.
Carolyn MelroACCESS Open Minds Indigenous Youth Mental Health and Wellness Network, Lakehead University, Thunder Bay, Canada.

Funding

CIHR 143237University of Limerick GEMS-10
6 · The paper itself

Abstract

Access to healthcare in Canada remains a significant issue, with over one in five people lacking attachment to a regular primary care provider. To address this, patients, health professionals, researchers and policymakers are advocating for health system transformation aimed at improving access and achieving the quintuple aim. As a result, research funding increasingly prioritizes health system transformation. However, whilst collaborative approaches such as integrated knowledge translation (IKT) are critical for success, trainees face barriers to integrating patient and public engagement into their research. These challenges include limited time and resources, difficulties in developing meaningful partnerships, tensions between independent intellectual contributions and collaborative research and academic structures that reinforce power imbalances. This commentary presents four trainee experiences that demonstrate successful capacity-building initiatives for trainees to embed patient and public engagement in health system transformation research. The first case study focusses on the Patient Expertise in Research Collaboration (PERC), which supports Transdisciplinary Understanding and Training on Research-Primary Health Care (TUTOR-PHC) trainees in incorporating patient perspectives into primary healthcare research. The second highlights the role of the Integrated Knowledge Translation Research Network (IKTRN) in building trainee capacity through funding. The third explores a trainee experience with the ACCESS Open Minds Network (AOM). The fourth describes a trainee experience within a co-design study, the Enhancing Physical and Community MoBility in OLDEr Adults with Health Inequities Using CommuNity Co-Design (EMBOLDEN). These case studies provide insights into effective strategies for overcoming barriers to patient and public engagement in research. However, opportunities for such engagement remain uneven and depend on limited funding. To foster sustainable support, academic institutions must integrate these capacity-building initiatives, promoting a future of primary care in Canada that is inclusive, patient-centred and responsive to evolving population needs.

Indexed as

Community ParticipationHealth Services ResearchPatient ParticipationPrimary Health CareTranslational Research, BiomedicalCanadaCapacity BuildingCooperative BehaviorHealth Services AccessibilityHumansCapacity-buildingHealth system transformationIntegrated knowledge translationPrimary careTrainee

Identifiers

PMID40759958
PMCPMC12323194

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.