ArticleAlzheimer's & dementia. Behavior & socioeconomics of aging2025
Guided by the community: Insights on recruitment science from the African Americans Fighting Alzheimer's in Midlife (AA-FAIM) Project.
Article in Alzheimer's & dementia. Behavior & socioeconomics of aging, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
5 citing papers in PubMed.
- Engendering trustworthiness in the community: Strategies for researchers.Journal of Alzheimer's disease : JAD · 2026Article
- Mild Behavioral Impairment is Associated With Incident Cognitive Decline Among Dementia-Free, Racially Diverse Older Adults: Data From the African Americans Fighting Alzheimer's in Midlife (AA-FAIM) Study.The American journal of geriatric psychiatry. Open science, education, and practice · 2025Article
- Using a Community-Based Participatory Research Approach to Study the Mental Health of Older Adults with a Refugee Life Experience.International journal of environmental research and public health · 2025Article
- The performance of plasma p-tau217 in Black middle-aged and older adults.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2025Article
- Perception of dementia risk among Black adults: an ecological analysis of causal loop diagrams with a structural and social determinant of health composite index.Alzheimer's & dementia (New York, N. Y.)Article
Corrections and comments
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Authors and funding
13 authors.
Funding
Abstract
Introduction: Although Alzheimer's disease and related dementias (ADRDs) are disproportionately high in Black/African American (AA) individuals, this population is under-included in biomarker studies and clinical trials. This underrepresentation contributes to health disparities in treatment and disease outcomes. The Wisconsin Alzheimer's Disease Research Center (ADRC) and the Wisconsin Registry for Alzheimer's Prevention (WRAP) at the University of Wisconsin-Madison have been successfully conducting the African Americans Fighting Alzheimer's in Midlife (AA-FAIM) Project since 2016. The AA-FAIM Project aims to promote the timely, valid detection of ADRD for Black/AA groups and to increase their inclusion in ADRD research. Method: We describe the infrastructure and engagement strategies of AA-FAIM, a longitudinal research program focused on examining and reducing the health disparities observed in Black/AA individuals facing risk for ADRD. We describe practical, sustainable methods used to meet our recruitment, enrollment, participation, and retention goals. Results: We report enrollment numbers as evidence of the effectiveness of this work. We attribute our success to several strengths. First, AA-FAIM incorporates the principles of community-based participatory research (CBPR), including strong community partnerships and an active, engaged advisory board. Second, the program is guided by the Participant and Relationship-Centered Research Engagement (PRCRE) and the STEPS models. Third, AA-FAIM uses creative, culturally respectful programs. Fourth, a key element is the partnership between the Academy and the people embedded within the community. Discussion: We discuss our experiences establishing and maintaining the AA-FAIM Project and offer insights to increase the representation and inclusion of Black/AA individuals in ADRD studies.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.