Evidence map›Paper›PMID 40749456›Full record

ArticleEpilepsy & behavior : E&B2025

Behavioral health resources among US pediatric epilepsy centers.

Janelle L Wagner, Rachel Hirschberger, Julie DesMarteau, Cortney Wolfe-Christensen, Grace Gaston, Sucheta Joshi, Anup D Patel, Matthew Sweeney, Amani Jridi, Zhining Ou and 2 more

Abstract read
In one paragraph

Article in Epilepsy & behavior : E&B, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

Janelle L WagnerMedical University of South Carolina, 99 Jonathan Lucas Street MSC 160, Charleston, SC 29425, United States. Electronic address: wagnerjl@musc.edu.
Rachel HirschbergerBoston Children's Health Physicians of New York and Connecticut, 40 Saw Mill River Road Suite FB-1, Hawthorne, NY 10532, United States; New York Medical College, 40 Sunshine Cottage Rd, Valhalla, NY 10595, United States. Electronic address: Rachel_Hirschberger@bchphysicians.org.
Julie DesMarteauUniversity of Rochester Medical Center, 601 Elmwood Ave, Rochester, NY 14642, United States. Electronic address: julie_desmarteau@urmc.rochester.edu.
Cortney Wolfe-ChristensenCook Children's Meidcal Center - Forth Worth, 801 7th Ave., Fort Worth, TX 76104, United States. Electronic address: Cortney.Wolfe-Christensen@cookchildrens.org.
Grace GastonMedical University of South Carolina, 171 Ashley Avenue, Charleston, SC 29425, United States. Electronic address: gastong@musc.edu.
Sucheta JoshiChildren's Hospital Los Angeles, 4650 Sunset Blvd., Los Angeles, CA 90027, United States. Electronic address: sjoshi@chla.usc.edu.
Anup D PatelNationwide Children's Hospital, 700 Children's Dr, Columbus, OH 43205, United States. Electronic address: Anup.Patel@nationwidechildrens.org.
Matthew SweeneyThe University of Utah, 201 Presidents' Cir, Salt Lake City, UT 84112, United States. Electronic address: Matthew.Sweney@hsc.utah.edu.
Amani JridiThe University of Utah, 201 Presidents' Cir, Salt Lake City, UT 84112, United States. Electronic address: zhining.ou@hsc.utah.edu.
Zhining OuThe University of Utah, 201 Presidents' Cir, Salt Lake City, UT 84112, United States. Electronic address: Amani.Jridi@hsc.utah.edu.
Nilika SinghalUniversity of California San Francisco, Benioff Children's Hospitals, 1825 Fourth St., Fifth Floor, 5A, San Francisco, CA 94158, United States. Electronic address: nilika.singhal@ucsf.edu.
Jason CoryellOregon Health & Science University, 700 S.W. Campus Drive, Portland, OR 97239, United States. Electronic address: coryellj@ohsu.edu.

Funding

Utah Center for Clinical and Translational ScienceUL1TR002538 · NCATS · UNIVERSITY OF UTAH · PI HESS, RACHEL, MAJERSIK, JENNIFER JUHL · 2018 to 2022
$26.0M
University of Utah Center for Clinical and Translational ScienceUL1TR001067 · NCATS · UNIVERSITY OF UTAH · PI DERE, WILLARD H., HESS, RACHEL · 2013 to 2017
$19.8M
UNIVERSITY OF UTAH CENTER FOR CLINICAL AND TRANSLATIONAL SCIENCE-UL1: BPCAUL1RR025764 · NCRR · UNIVERSITY OF UTAH · PI MCCLAIN, DONALD A. · 2008 to 2011
$19.4M
University of Utah Center for Clinical and Translational Science-UL1UL1TR000105 · NCATS · UNIVERSITY OF UTAH · PI MCCLAIN, DONALD A. · 2012 to 2013
$5.1M
NCATS NIH HHS UL1 TR000105NCATS NIH HHS UL1 TR001067NCATS NIH HHS UL1 TR002538NCRR NIH HHS UL1 RR025764
6 · The paper itself

Abstract

Current guidelines, quality indicators, and recommendations broadly recognize the importance of behavioral health care integrated into routine epilepsy visits; however, no specific guidance currently exists for how to implement this care. To address this gap, the Value-based special interest group (SIG) of the Pediatric Epilepsy Research Consortium (PERC) developed and disseminated a survey to inquire about availability and access to behavioral health care and roles of behavioral health care providers (e.g., neuropsychologists, psychologists, and social workers) within epilepsy centers across the US. This 52-item survey was emailed to directors of the National Association of Epilepsy Centers (NAEC) level 3 and 4 pediatric centers (n = 130). The response rate was 38 % (N = 50 centers). The 14 questions pertaining to behavioral health care and several additional items regarding epilepsy center size (i.e., number of neurologists) and comprehensive care resource availability are presented here. Survey results identified that most sites (80 %) have access to neuropsychologist(s), who uniformly perform presurgical evaluations. In contrast, only a quarter of centers have psychologists dedicated to epilepsy patients, with 40 % of them indicating a greater than 3-month wait to see a psychologist. Approximately half of centers have social workers dedicated to epilepsy patients. Common practice for all three of these behavioral health professionals is discussed. Findings underscore the need for greater access to psychologists and more defined roles for behavioral health providers within specific settings to increase the availability of and decrease wait times for behavioral health care.

Indexed as

EpilepsyHealth ResourcesMental Health ServicesPediatricsChildHealth Services AccessibilityHumansSurveys and QuestionnairesUnited StatesBehavioral healthIntegrated carePediatric epilepsy

Identifiers

PMID40749456
PMCPMC13579543

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.