ArticleJournal of medical Internet research2025
Reddit as a Social Media Self-Management Tool for Inflammatory Bowel Disease: Qualitative Analysis.
Article in Journal of medical Internet research, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
3 citing papers in PubMed.
- Gestational diabetes mellitus and disordered eating behaviours: A qualitative study of online forum discussions.Diabetic medicine : a journal of the British Diabetic Association · 2026Article
- Preferences, Expectations and Management Satisfaction in IBD Patients: A Cross-Sectional Questionnaire-Based Study.Journal of clinical medicine · 2026Article
- Discrete mathematical network analysis bridging clinical vocabulary and patient discourse in interstitial cystitis/bladder pain syndrome online communications.Scientific reports · 2025Article
Corrections and comments
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Authors and funding
11 authors.
Funding
Abstract
Background: Given the widespread discussion of inflammatory bowel disease (IBD)-related topics on social media, these platforms play an important role in increasing our understanding of the needs, preferences, and experiences of patients living with IBD. Objective: This study aims to develop an in-depth understanding of Reddit (Reddit, Inc) social media discussions related to individuals' experiences and perspectives living with and managing inflammatory bowel disease. Methods: We identified threads on the r/IBD, r/Ulcerative Colitis, and r/CrohnsDisease subreddits between April 2022 and 2024 using a priori selected keywords to identify IBD-related experiences, perceptions, and needs. We used rapid qualitative analysis using preselected keywords (deductive) followed by further domain development (inductive) to generate a broad understanding of Reddit discussions related to patients living with IBD. Results: We identified 659 posts comprising 207 (31.4%) original and 452 (68.6%) reply posts related to patients living with IBD. Findings highlighted that people use Reddit to seek knowledge, advice, empathy, and validation as well as to share experiences in five key areas related to: (1) symptoms as a major burden of patients living with IBD; (2) experiences with medications and concerns about treatment choices; (3) health care-related challenges; (4) dietary regimens and dietary guidance for handling symptoms and overall treatment; and (5) negative impact of IBD on mental health. Conclusions: Use of social media as an avenue for patients with IBD to gain knowledge, empathy, and support suggests that traditional clinical care does not fully address the needs of patients living with IBD as it relates to IBD knowledge, advice, empathy, validation, and sharing of experiences. While social media platforms can provide a platform for patients to share their experiences and build community, study findings also inform future efforts to address identified gaps in care, including the development of interventions to assist patients in managing their symptoms, diet, medications, health care, and mental health concerns.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.