Evidence map›Paper›PMID 40748360›Full record

ArticleEuropean journal of pediatrics2025

"Not just about the pump"-providing sexual and reproductive health information to adolescents with heart disease.

Annika Bay, Harpa Vidarsdottir, Elisabeth Jangsten, Åsa Burström

Abstract read
In one paragraph

Article in European journal of pediatrics, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Annika BayDepartment of Nursing, Umea University, 90736, Umea, Sweden. annika.bay@umu.se.
Harpa VidarsdottirDepartment of Pediatric Cardiology, Astrid Lindgren Children's Hospital, Karolinska University Hospital, Stockholm, Sweden.
Elisabeth JangstenUniversity West, Trollhättan, Sweden.
Åsa BurströmDepartment of Neurobiology, Care Science and Society, Karolinska Institutet, Stockholm, Sweden.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

More adolescents with congenital heart disease (CHD) are reaching adulthood and reproductive age. They face challenges transitioning from pediatric to adult health care and need to manage their health and developmental goals. The 2030 Agenda emphasizes a holistic approach to sexual and reproductive health rights (SRHR), aiming to provide accessible information to adolescents. Healthcare providers (HCPs) must offer appropriate information about CHD and SRHR issues. This study aimed to describe HCPs' experiences of informing adolescents with heart disease about SRH. An explorative study with a descriptive design using semi-structured interviews. The qualitative content analysis method by Graneheim and Lundman was used to analyze the data. The interviews provided a wealth of data, revealing different opinions and experiences. The analysis resulted in four main categories: (1) organizational culture, (2) health care professionals' perception of adolescents' needs, (3) skills and ability are essential, and (4) parents' influence on conversationConclusion: Discussing SRH is universally accepted among HCPs, but prioritization varies. HCPs must customize information, consider the timing and setting of the conversation. Enhanced knowledge and skills in SRH are essential, including strategies to overcome barriers and respectfully involve parents. Crucially, adolescents' rights to SRH information must always be upheld. What is Known: • There are challenges in the transition from pediatric to adult care in managing adolescents' health and developmental goals. Health professionals need to provide appropriate information to adolescents about their sexual and reproductive health. What is New: • This information needs to be tailored to the time and setting of the counselling session. Health professionals need to know more about how to provide this information and are looking for more knowledge on the subject.

Indexed as

Attitude of Health PersonnelHeart Defects, CongenitalReproductive HealthSexual HealthAdolescentFemaleHealth Knowledge, Attitudes, PracticeHealth PersonnelHumansInterviews as TopicMaleQualitative ResearchAdolescenceCongenital heart diseaseInformationSexual and reproductive health

Identifiers

PMID40748360
PMCPMC12316719

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.